Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-31-2014, 10:32 PM #1
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Quote:
Originally Posted by Chloeanne View Post
Good morning, my name is Chloeanne. I have been diagnosed with CRPS this month and some of the things I have read are scaring me to death. Mine isn't really terrible as I take no pain meds. The pictures I have seen are scary, it's in my right leg from the knee down and has spread to my left leg. I have a wonderful pain management doctor but I'm a little upset with my orthopedic surgeon. This started after taking out the torn part of the meniscus and needle aspiration of a golf ball size cyst on the inside of my leg beside my knee. I don't know what to expect, he hasn't even told me any thing about this syndrome. I feel like it is all in my head but the doctor that put me to sleep for the injections said it wasn't. Why won't they tell me about this. Articles I have read say I need to talk with a phycologist and go to physical therapy. Someone please let me know what is happening to my body. Up until I turned 49 I was so healthy and strong and active. Now I don't even want to clean the house that I love. I cry every time I think about this. I have always been a happy smiling woman, I am not going to let this get me down or anyone else!
Chloeanne,
Sorry and welcome you are here for that reason,for now you already have an idea about rsd in general ,sound and is scary,for real.
For one the only thing I will add for you is a link for rsdsa ,you will learn more the medical part from it,the emotional part,we all here can give you a hand at anytime,best wishes from Jeiska

http://www.rsds.org/index2.html
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Old 06-01-2014, 01:49 PM #2
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Welcome Chloe,
Sorry for the reason you need to be here, but it's a great group!
I care deeply for members on here but can't write much at one time.

Please read all you can on the links others have given. One thing that eased
my fears
early on is that there is no "one size fits all" time line or course of treatment.
We do share our stories of those things for the very reason that medical
community has limited knowledge of this disease.
YOU HAVE TO BE YOUR OWN BEST ADVOCATE WITH THIS! That advice was
given to me by a life saver of a physical therapist. She DOES know
something about this! Gentle physical therapy early on IMO is essential!
I don't have much use of my hand & arm, but I would have none otherwise.
Please don't concentrate on worst case scenarios for now!
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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birchlake (06-01-2014), Brambledog (06-01-2014), deb b (06-02-2014), eevo61 (06-01-2014)
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