Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-17-2014, 04:22 PM #1
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Phaedra, I am sorry to hear this. I know you have been waiting to see this guy. I know exactly how you feel though, it is very frustrating. I went to see a dr on Friday, waited since February to see this idiot. He kept asking me "are you sure you don't have small fiber neuropathy?" He really didn't think it was RSD in my feet and hands, that has been there for many years. He said I didn't "look" like I had RSD. Oh, and he asked me if I tried contrast therapy...really?? That is so wrong for RSD!! We argued about that

Why does this dr want you to have a bone scan if he doesn't think it is RSD? What other tests? Bone scans are not conclusive for diagnosing RSD, but if he is looking for something else then it may be necessary. I had one on my right hand and it was normal...I have RSD in both hands! What kind of therapy did he order? Does the family dr know how to treat RSD or understand it? I see my PCP monthly and she manages any medication (including any pain meds) for me since I cannot find a PM dr that is worth a crap!

I don't know why it is so hard to find a decent dr these days! I hope you can get some good answers soon!

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Old 06-17-2014, 04:45 PM #2
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Thanks Nance. My first thought was he is a workers comp doctor therefore he really doesn't care. He gave me no clue as to why the bone scan. He said he wanted the therapist to evaluate and report back to him. I am already going to therapy for The Orthopedic doctor who al least admitted he couldn't treat RSD. He gave me no answers at all he just created more confusion and questions. I personally think he just doesn't care. I think he took one look at my leg and noticed very little swelling and didn't see the bright red coloring or purple coloring and made up his mind on that. I have color changes but they are not real bad unless I have been over doing it a lot. I have swelling but not as bad as it first was. I have a real shiny patch of skin that is sometimes hard to see. To people who know me like my husband and mother in law they see it . He wouldn't even let me finish my list of problems I have had. So that being said I will talk o my Mother in law who worked with my family doctor and see if I can't get her to agree to treat me. I will get Mother to go see her with me. I still have to talk to attorney about this too. If any one else has some suggestions please help.
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