First post so a big hello to everyone in the forum.
I’ve never met anyone with CRPS so it’s good find this forum and know there’s others out there with same condition
I do have a question but I’ll give a quick rundown on how my CRPS come about.
I was diagnosed back in 2009 with CRPS in my right ankle after i fell over and rolled my ankle.
I had my ankle X-rayed after the fall and had no broken bones but it was swollen, black from bruising and terribly painful and from the swelling i had no movement at all.
At the 5 week mark i fell of my crutches and put my body weight on my ankle, felt pain like never before. Got a CT scan which showed id broken 3 bones and had started to develop Osteopinia.
By this time my ankle was doing strange things, felling icy cold and sweating at the same time, turning purple with white dots.
I was lucky the specialist picked up on this straight away; As soon as he looked at my ankle he said you have RSD.
He sent me to Physio who also seemed pretty knowledgeable about CPRS, It took another 8 months of pretty intense physio to get me to where i could stand again, Had to learn to walk again as it was like I’d forgotten how.
After 14 months from initial injury i went back to work but with a painful limp, 5 years later i can walk with no pain at all but I’ve lost a bit of movement.
Still get the icy cold feeling and sweating.
If i try and run or put any strain on it, it’s followed by a couple days of pain but i feel I’m managing the ankle well and it’s not interfering too much in day to day activities
Over the years I’ve developed a heat intolerance, Not necessary in my ankle it’s something that’s affecting me as a whole, I’m sensitive to sun light, also find myself turning lights off in side as they seem to make me hot.
My entire body sweats as if someone’s hosing me down. The last couple summers I’ve pretty much had to stay indoors and spend allot of the time in bed totally exhausted.
I’ve never associated this with my CRPS before as I’ve had some thyroid problems and attributed the heat intolerance to the medication i was taking but over the years and more tests then i can poke a stick at, The doctors have come to the conclusion that it’s not Thyroid related and I’m pretty confident with this diagnoses as well.
But after all the tests they still can’t come up with any reason for the heat intolerance
I’ve started writing down a timeline to try and figure out when this heat intolerance started. I can go back to summer when i was stuck at home with my initial ankle injury but i guess thinking back now i didn’t think too much about it the time, the pain i was feeling in my ankle was pretty much occupying all my time.
So my question is has anyone suffering from CRPS had this kind of heat intolerance before? I know that CRPS is related to the nervous system and so is the way the body regulates temperate, do they go hand in hand i really don’t know but i haven’t been able to figure out any other reason what’s happening.
Thanks for reading sorry if its a little long, hard to get all the info in one post