JimKing

Thanks for your post. Yes many hospitals/doctors use blocks on patients with RSD pre op. It's pretty standard. It's odd I am getting push back after we talked about it in person and agreed on what was the best course of action for me. But when push comes to shove, I have had push back with other doctors/surgeons or anesthesiologist before. The real issue is, they can tell you to your face they will do x,y,z but it rarely gets puts in writing, and if it does, once you hit that hospital and operating room, they have all the power and don't necessarily follow what was prescribed, suggested or recommended. I am not trying to scare anyone or be dramatic, it is merely my experience. There is no guarantee they will do anything but standard protocol for that surgery regardless of RSD and many other conditions. I was very prepared and met with anesthesiology already to work this out even though my surgery is many many weeks away. But what was said behind closed curtains is now not what seems to be happening. It makes me uncomfortable. Changing hospitals and surgeons does not help the matter unless you can get said protocols in writing, blood, skywriting lol...etc and then still, it seems they do whatever they want once you go in, regardless. I try hard to advocate, calmly, respectfully and non aggressively, but with conviction, but I guess I am just not that good at it.

I am hopeful it will turn around, soon and things will get back on track, but I am nervous.....I keep the faith and keep pushing forward!!!!!!!

thanks

The association may have a protocol, but won't matter when it comes to insurance and legal matters.
I have RSD too, and am looking at a neck surgery...
1 doc said fusion, but getting another opinion. Feels like a compression problem.. Trying to avoid any surgery, but my headaches are getting bad..

I keep hearing people get RSD from fusion surgery.. Not good!

Tashi

Yeah I tend to agree re: insurance/legal....and sorry you are in such pain. It is a hard road when we need to have surgery. Best we can do is try to advocate for what we need, and hope that doctors will help us get some treatments we need or that could benefit us...

Hang in there....

I had around 7-8 block and was always got first through pre op, wondering why they are changing their mind?
Confusing for sure, my first block was ok ,little pain after but I was working he next day and few days later I ended having muscle spams , after that my PCP order three days off to let my body rest and medication to work as it's supposed to but never lasted enough time ,the effect. At the end I got my scs, what I recently found out ,while I was getting my scs ,my left side leg was already rsd active and dr and even I missed ,I thought I was pushing my leg to much and protecting my right side been so affected that all my weight was on my left leg, but I have hell of a ride after the scs implant, until this past January it was repositioned to my abdomen , a month later got a second surgery ,gallbladder removal,due to stones and limb nodes, but I was very well care by my GI dr and the anesthetist who both new rsd,not crps, but rsd,mention both terms make a difference in my care, they where so careful before and after the surgery ,so my abdomen have quite few scars,I don't mind,but I'm ok,safe and sound, no extra trauma,neither pain at all from any of those procedures and why is that? Dr where educated about rsd/crps ,both teams where making the difference , if they are changing your treatment means either they don't know for sure or don't care enough, you don't need any of that bs, you need to be and feel safe,change dr if something don't feels quite right to you, your body know how much pain you already endure ,don't let them add more.
That's why I switched dr ,pm dr after few months, recalling conversations are not their specialty,really,they suddenly got memory loss,so why are the files for , the records they review in each appointment, just to get their offices full,of trash, really?
no, if you don't get what you need to avoid rsd spreading you are done there. I even heard an story about a lady getting rsd while a blood drawn and one more patient getting rsd after having a surgery and having taking her blood pressure, rsd can be trigger in many ways, why take the risk .
I had successful surgeries with not rsd spreading because the dr where prepare and educate enough, be mean than, print out rsd researches and give those to your dr and anesthetist ,maybe they need few lessons don't feel shy, teach them !!!!
Ignorance won't make us feel worse ,we don't deserve more pain, fight them with education and if they are still in denial changing the plans ,move and don't take chances, is something you can't take any risks ,you have enough , we can only manage so much,don't allow anyone to hurt you, leave and go a to a place where you can have real references from patients ,get the dr numbers ,stop by their offices and sit there ,ask patients how the dr are,is a way to make sure they are for real caring people.
I hope you find the best treatment you deserve and need and guess what, bs who thinks that is not right !!!!
So my advise, be more aggressive and demand if they don't listen,remember you can leave and complaint to medical board ,they are dr and anesthetist with public records and a complaint is something that hurts the credibility and also how professional they are , those complaints stays in their records.you can hurt them more when a board of medicine investigate them,each state records are public, go the dr board of medicine and complaint about the way they had treat you and leave,you don't need to get rsd everywhere for a negligent dr and anesthesiologist , you deserve right.
Good luck and hope everything get resolve in the best way for you ,no adding and getting afraid to get more harm,with love and blessings Jesika .

Thanks so much Jessika

I am at work so I can't respond more than THANK YOU right now. You are so sweet to offer support and advice.