Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 07-09-2014, 11:59 PM #1
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Rsd got me lay off and...

Fighting to get my medical coverage for llife, rsd was as a result of a job injury and will live with it for life,lawyers think many people will settle for money, I'm not one of those , I need medical coverage for my rsd and also my right foot and ankle injury which never will be able to get a fusion due to my rsd, and they almost left that out in my court day last week, I put a fight with my own lawyer who thought I was ok with just foot and ankle coverage ,non sense, rsd is a huge deal and I lectured her and fight her to get me my benefits and a new court day to gather more information to add in my case.
Being with rsd, severe insomnia, stress ,depression which are not cover under my claim don't know why makes my rsd flares more than ever , I went back to my ankle brace, still can wear tennis shoes and some shoes with a costume made insets and the brace , I got lay off because the company is doing changes and cutting budget and I don't longer met their criteria , I was even called by my manager something I will never forgive her for : you used to be a good worker,the best, but not anymore. How do you think I felt , like someone slap my face , it was so awful knowing how much work and dedication I put to helped people ,so I did answer with his: well, I know I do t met your criteria and I'm still the best worker you had, no one will do what I did, you got to this point because of me,but if fine, I was doing a difference by helping people ,but if you as corporate representatives don't think that way, making a difference matter to help others well in that case ,yes I'm in the wrong place,you trained me to so well and now I'm useless to you, nice thanks so much for the opportunity you had gave me to prove that I can still do my job, I do appreciate all the calls you made me all the time I was in medical leave to help you and do my work from home ,yes I do appreciate that because after all considering I was good , how bad worker I was when you called me, yes you are right, I'm not good to you , but guess what, I'm not good, I'm the best so please make me a favor ,don't call me every time you need help or want to use my phone to text other employees to show to work , yes I'm not good even when still days ago you were doing that.
Our meeting that we had finished and they told me HR will call me with the decision ,Saturday I got the letter saying I don't meet the criteria and might not be able to handle all the chances the company is suffering ,well I was already mentally prepared .
I will never allow anyone who used me to say, I was good but not anymore,my good bye was by the way I have verizon company phone services. and can at any time requested my bills and see all your calls, don't tell me how good I was, because I'm still and you are not going to be any more because I'm not longer here.
Was and awful week, I had several weeks of flares just because I was waiting for a resolution , I never got the chance to get back to work and now seems like I won't perform well, she had me working for 18 months in worse conditions and same restrictions or less ,now I'm not allowed to return because the upper management never knew I was there with restriction until this January that I was getting a second surgery and my medical leave was about to expired but unions gave us three extra months , and now even the union is against any involvement , funny , I'm by my self but ready to keep the fight , I will continue asking and protecting what are my rights and rsd treatment for life is one of them, I don't care if my lawyer or anyone what's to close my case, unless I agree it won't happen at any time soon.
Guys ,is hard and real frustrating ,disappointed and lots of anger but I will not give away my needs, I been suffering enough , you guys know me for a while and I'm not seeking for money, I'm seeking for my mind been free of any stress knowing I been taking care for the future and not to worry about that, I already have too much and is painful to think about the future , my scs will requires maintenance and rsd changed , my left leg is also affected, my sciatic nerve as well, I had the generator repositioned to my abdomen in January of this year due to the pain I had for months I. My buttock, remember that? Well two new doctors agreed ,rsd was already affecting my leg and my dr ignored,when this two new dr agreed and plan what to do ,the insurance from my company sent me a letter saying they don't longer belongs to the network , is that fair.
An idiot IME saw me a day before my surgery and declare partial disable in 5 minutes or less and cut my TTD in half, I can't verily pay my bill, I had a month later a gallbladder surgery ,I still own more then 3000 in medical bills no rsd related and how can I pay when I can't work, I'm doing my best to pay what I can but this system is so unfair , I'm dealing with too much, no one will take my rsd benefits or any benefits away, are you agree?
Thanks for listening , is been a long journey and bad weeks ,so many bad days but I'm faithful and think I do deserve something right for once, I'm tired and really sad of what happens but it won't change me at all, I'm still the same person, with more experience and more sadness but a good person and I will be that way for anyone who needs me ,thanks so much for you support, with loving hugs and care Jesika .
__________________

.

Last edited by eevo61; 07-10-2014 at 03:58 AM.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (07-10-2014), Russell (07-13-2014)

advertisement
Old 07-10-2014, 08:23 AM #2
visioniosiv's Avatar
visioniosiv visioniosiv is offline
Member
 
Join Date: Nov 2013
Posts: 257
10 yr Member
visioniosiv visioniosiv is offline
Member
visioniosiv's Avatar
 
Join Date: Nov 2013
Posts: 257
10 yr Member
Default

Hi Jesika - you are so strong and no one can tell you otherwise. I can't imagine what you're going through but wanted to thank you for all the support you give here. The lack of appreciation you're experiencing lately is the opposite of how much you are appreciated here.
visioniosiv is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (07-10-2014), RSD ME (07-10-2014)
Old 07-10-2014, 05:15 PM #3
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Hugs Jesika...I am SO very sorry for everything that you are going though. I feel like I went to hell and back with my employer and I eventually did come out the other side...but it was a long crummy battle.

You definitely need to keep sticking up for yourself with your attorney. Sounds like a real jerk...mine was that way too. I didn't want to settle, went to trial, won a decent award, work comp appeals, award was significantly reduced, and then my attorney turned into a jerk and clearly just didn't want to fight any more. Pushed and pushed and pushed for me to settle and actually got verbally abusive at a point where I felt like breaking already even without that. Stay strong and know you always have a place to vent. I know it helped me a lot when I was going through all that to have this place even just to get all my thoughts out of my head and clear my mind so I could focus on what I really needed to worry about...my health.

This is just an incredibly crummy turn of events for you and I hope that things start turning around soon. Take care of yourself.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (07-10-2014)
Old 07-10-2014, 08:32 PM #4
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Quote:
Originally Posted by visioniosiv View Post
Hi Jesika - you are so strong and no one can tell you otherwise. I can't imagine what you're going through but wanted to thank you for all the support you give here. The lack of appreciation you're experiencing lately is the opposite of how much you are appreciated here.
Thanks so much , I was focusing so much on fighting my rsd and getting back to work but wasn't what I hoped but I'm wiling to keep looking for medical benefits for life the company agreed but I want a document detailed with all what will be included , I don't trust any of them, I do know legal documents end to be specifics no just assuming something and I don't trust like I said neither my layer or the defense so I'm putting a fight no matter how long takes and about my job I will first find more information of what or what to do and also works more in my wc benefits ,rsd is for life, I can't get anything less than what I will need ,the future is uncertain so I will need to have something ready and cover when a moment came I'm ready to face it.
I'm so glad and thankful for your kind words and support, it is hard but I have to be stronger than ever, I know you are all here and I do appreciate that, I want to be here more, lately I had weeks for flares and recently finally get some relief for a while but took me so long to get to this point and I want to be at least be able to do my basic shores and get up,that's my goal and was hard but I'm not giving up. Also my painsomnia is ruling my nights , no even my LEDs work but stress will be the one to blame
I will let you know how things are going and hope I get what I will need in the future ,thanks for your help and support , also sending you lots of love and hugs,from Jeiska
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
Old 07-10-2014, 08:42 PM #5
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Quote:
Originally Posted by catra121 View Post
Hugs Jesika...I am SO very sorry for everything that you are going though. I feel like I went to hell and back with my employer and I eventually did come out the other side...but it was a long crummy battle.

You definitely need to keep sticking up for yourself with your attorney. Sounds like a real jerk...mine was that way too. I didn't want to settle, went to trial, won a decent award, work comp appeals, award was significantly reduced, and then my attorney turned into a jerk and clearly just didn't want to fight any more. Pushed and pushed and pushed for me to settle and actually got verbally abusive at a point where I felt like breaking already even without that. Stay strong and know you always have a place to vent. I know it helped me a lot when I was going through all that to have this place even just to get all my thoughts out of my head and clear my mind so I could focus on what I really needed to worry about...my health.

This is just an incredibly crummy turn of events for you and I hope that things start turning around soon. Take care of yourself.
Thanks so much, I know is real difficult to deal with the system,and been with the stress and pressure of now be un employee makes things harder but I'm willing to keep,fighting , I'm not felling bad because I did more than my best and many times you wonder why you are treated like this but life is hard and those questions many times are never answer.
I will admit ,hurts emotionally more than psychically ,because the pain you can take a tablet and the body will get calm but your mind doesn't .
I do hope soon get over with this nightmare but I'm always positive and still believe in people , not everyone is bad or mean , I'm not that way ,never been but is not what I deserve even if you do good you want to be treated same way but life's changes are many times different of what you really think it is.
I'm happy to be here, I'm happy to share and be able to help in some way, I'm happy even if rsd will never leave me but I can try my best to handle it and be positive and never give up,I will keep fighting with my faith of getting what I will need In the future.
Thank you so much and also happy for your sharing with us your baby updates ,makes me happy as well and hope soon you let us know the gender, boy or girl?ummm,can wait!!!! let us know ok,please !!!!
We all waiting ok, gentle hugs and lots of love from Jesika .
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
Old 07-10-2014, 09:52 PM #6
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Jesika, I'm so sorry for what you're going through. I hope that when you see a labor law lawyer that they can help you. Don't give up hope and try to get some rest. Stress is no good for you. It makes rsd worse. My thoughts and prayers are always with you. Soft hugs, from your friend, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (07-10-2014)
Old 07-10-2014, 10:13 PM #7
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Default

Jesika, so sorry you are having such a difficult time. You are strong, and you deserve to be treated fairly. You are always a ray of sunshine for us, we will be here for you too. Wishing you wellness ~Lottie
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
Lottie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (07-10-2014)
Old 07-10-2014, 10:15 PM #8
Phaedra's Avatar
Phaedra Phaedra is offline
Junior Member
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Phaedra Phaedra is offline
Junior Member
Phaedra's Avatar
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Default

I would be out raged too. I can't imagine why they would be so awful to you. You are one f the nicest people I know. You are always checking on me and letting me know you care. They are losing a wonderful person when they let you go. I will being saying a prayer for you.

Phaedra
__________________

.

.

Phaedra
Phaedra is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (07-10-2014)
Old 07-10-2014, 11:03 PM #9
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Quote:
Originally Posted by RSD RENEE View Post
Jesika, I'm so sorry for what you're going through. I hope that when you see a labor law lawyer that they can help you. Don't give up hope and try to get some rest. Stress is no good for you. It makes rsd worse. My thoughts and prayers are always with you. Soft hugs, from your friend, Renee.
Knowing I have you guys with me makes believe for sure things will be ok, I never felt more secure than be here with you, Renee we had and keep,sharing so much and also a lots obstacles in our way but faith and hope keep holding us,still together ,yes in deed we are,walking together, your sister Jesika ,with love for sure!!!!
Renee ,I can't tell you how much you meant to me, I'm sure you already know, few lines for you are not what you deserve , you have my friendship and my heart sure with you and your family.
My family always ask for you, mention many of our family members here and they ask for you when I don't mention you, they love you too, you are such a great and nice person and I hope one day I can meet every single one of you,I want that to be the first thing in my bucket list, I hope my days here will be a bless for others as well as you are for me.
Still pending our gelato with macarons ,remember ,pistachio macarons ,so yummi with gelato or ice cream, one day we will share it for sure. Again thanks so much with lots of hugs and love Jes.
__________________

.

Last edited by eevo61; 07-10-2014 at 11:29 PM.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (07-11-2014)
Old 07-10-2014, 11:12 PM #10
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Quote:
Originally Posted by Lottie View Post
Jesika, so sorry you are having such a difficult time. You are strong, and you deserve to be treated fairly. You are always a ray of sunshine for us, we will be here for you too. Wishing you wellness ~Lottie
My heart is full of happiness and also full of love for all or you,been here is a bless and all we had being through as a community makes us be there for each other's , you are here for me now, I'm so bless and my heart full of joy knowing you are holding my hand and keep me going.
I always believe ,in life what you give is what you get, I got unfairness but I got bless with each of you , you are my fair,kind and gentle souls,friends that will always understand suffering for real , and also known disappointment ,but for sure not from any of us, life gave us a chance to do good maybe don't receive good many times, but being here receiving your love and support is for sure he best reward to what I call my good deeds, I'm very thankful to you and everyone who in any occasion I needed you extended your hand and offers me a shoulder, because gosh, I did cry like you had no idea but you where next to me,I was thinking and always think you all do suffer as well and maybe more than me,but we all let our own conditions aside and hug the ones in need,thanks so much and I will continue doing my best to be who you guys met, the real me.
With love Jesika
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lottie (07-11-2014), RSD ME (07-13-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:38 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.