I am really sorry that you had a bad night. I had a bad night as well! I hope your day is better than mine has started out to be! Have a wonderful day...... Here are lots of gentle hugs sent your way!!

Karen
I use the lidocaine patches on the bottom of my feet for the burn....it doesn't take it all away but gets it a little cooler. The hard part is deciding whether or not to use them in the day or night. They are 12 hours on and 12 hours off, so depending on the day I have to choose when to wear them. They do add a little cushion to my shoe during the day so that's a plus
Dana
Hope your day is turning out better than your morning One thing I've learned is I can restart my day at any time....so sometimes I have a lot of mornings in one day
Jeanne

Dana, Thank you so much. I was reading last night one of your messages and if I knew you were having the same problems I am and was having with dealing with this SH** I would of been right there .I understood everything you are going through the alone way I have make it with full body and in a chair and all this pain is finding people that understand and care I mean really care and are allways here for you. I am so close sometimes getting divoced in the middle having a teenager that I have full everything and Im starting be have seeing problems and writing and this morning I wake up after a couple of hours and my half of face is numb and its hard to talk or say all the words the right way and my son was hurt bad at school 2 weeks ago and today he woke up and his rib is syicking out so their is more damage then they thought but I try to breath but thats even getting hard and I was a hospic nurse I took classes at 17 and got my nursing lience thats all I wanted except a child and a husband I have a 15 yrs old but lost everything ealse but I keep waking up I dont know why but Im still a fighter and you are to. Email me anytime.......................Take Care Gentle soft hugs Karen

Sorry to hear your in such pain, Karen. What I don't like hearing is your eye sight and those headaches on both sides of your head. You also mentioned numbness of your lips. Karen, have you seen a neurologist for this? if not, please do. I'm worried about you! You son sounds like a "Gem"! what a sweetheart! Love, Desi

I was thinking the same thing as Desi - if these are new symptoms you need to have them checked - just in case it is something new and maybe "fixable" or treatable.

Im scared please read Desi I thought maybe the infection came back my mom said it can specially under all this stress with me and my son hurt and divorce and being alone here and full body but it been coming on slowly and I have started to lose control of insides Im 39 Im not ready I have been fighting with another long health issue from a dr from surgery that went bad feeding tubs for 5 yrs I cant do them anymore they burn my vains Im not even 100 pounds if you look at the two pics here they are only 3 weeks less then a year difference I cant keep weight on I just dont know anymore Im here for my wonderful son he keeps me going but what if I cant he told me that he is watching me swink and not see and hurt and truning into a shell the other day and today. He knows Im fighting for him but Im tired and headacks and vision and half my facenumb I dont know >>>>>>>>>>Can you help Jo55 I have been missing both of you (YOU AND DESI) Thanks gentle hugs Karen

How long has it been since you had a complete work up?
MRI or CT, full blood testing - those kinds of things.

Do you have a doctor that is actively directing your care and doing follow up ?

I have a great primary dr but CT OR MRI years fully blood test a few months a think I am having a hard time thinking and puttings things in the right way even writting emails my son said they are not making the same sence as before it sounds like it to me and when I email if I read them back its not. Its hard to find good care here drs are leaving to much to live here its hard. I dont know Jo55 I fill stuck i went to UCLA in Calif teaching hosptial but that was 3 yrs ago they said they same thing my pain dr a different dr then my prim dr said I have RSd and its bad and moving fast and they wouldnt do anything ealse I dont know ......I just want help if I can get some kind my birthmom a yr ago I meet her she has fibro. and I have a half sister in a chair to but she couldnt talk about it and I have been in my chair 3 yrs. and still have my walking ahahhahhacast on after 4 yrs no bone left.............Karen

Hi Karen! I agree with Jo on this! you need to have a complete work up. I just had mine all done. Also those ER doc's don't know nothing, it's best to see a specialist. Get yourself some of that "ensure drink" to help ya put on some weight. Are you seeing any type of neurologist? If so, what does he/ she say? I am keeping you in prayer sweetie. ((big Hugs Karen)) Love, Desi

Hi kitti, I just want to let you know , we are out here and thinking about you. Hugggggggggggggggggggs