Thanks Adalaide! helpful perspective and I'm happy you have had some migraine relief. best wishes for you and that quote at the bottom of your post made me laugh in the midst of tears so thank you so much!

thanks for all the valuable input and sweetness Jesika I appreciate the time you put into this too.

Welcome Winter, though of course I'm very sorry you have to be here. How long have you had CRPS?

I only see my GP and a pain specialist. To be honest, my GP doesn't treat the CRPS but she does the on-going prescriptions for the medications my pain specialist prescribes. (I'm in the UK so that works a bit differently.)

Early on, I had frequent physio appointments and did physio exercises multiple times at home. Now I just carry on doing physio on my own. I find the physio really helpful but you do need to be sensible about it.

I hope you are having a good day today. Take care.

KimA

Since RSD can affect nerve, skin, joint, bones and tissue, some people see a rheumatologist. What kind of symptoms are you having?



OMG!? I have to chime in with a question for fellow sufferers. I have been having major problems with my eyes. Now, this may be gross, but I have a problem with getting corneal ulcers. Very painful. It feels like I have glass in my eye when I get one. I almost lost vision in my left eye, I was very lucky we got it under control or it would have been too late. I'm only 35, and I don't wear contacts. So, I wonder is this related???

Your questions are so valid and also scare at the time,when we deal with rsd, all seems to be related.
So far I learned the symphatetic nerve controls sweat glands,nerves,body temperature, weight , nails and hair growing , stomach, so if you think about it all is deleted to the whole system ,if one organ don't work well there is a chain of reactions, your memory ,your sight get affected as well, a good optometrist will consider to take a picture to compare with the future pics of how your eyes inside get affected,my did and I glad he listened and care about to keep a record for the future after all ,rsd is neurologic and the brain is mostly responsible for all the changes .
I did paid extra few dollars for the picture but i didn't mind because the dr did care and suggested is good idea to keep a record of everything by keeping pictures of any change we notice,is the best advice I had receive in a longtime .
Many organs for sure get affected with medications as well by rsd controlling certain nerves,some dr decided to do some symphatetic nerve blocks but I are invasive and many times don't last as long as we expect.
Also many people due to rsd are not able to move an specific limb as before and many develop osteosporosis which later can develop into osteoarthritis,your bones can get dystrophy due to the lack of movement what's why physical therapy is so important ,keep in movement as much as you tolerated without hurting you .
I hope still helps a little and also check in rsdsa.org for some updates, I wish all a weekend full of days of relief and less pain,with love Jesika .

pain, swelling, color changes, temperature changes, loss of sensation.

sorry about your eyes! that sounds very painful and bothersome.what do you do when it gets like that? I hope you find something to alleviate at least somewhat and that you feel better.

thanks KimA. I'm sorry you have to be here too! not very long, but trying to learn all I can early. is physio the same as physical therapy?
hope you are feeling well~

thanks Jesika - this is so useful. I'll talk to the optometrist about the rsd. thanks for the info about osteoporosis, i didnt know this was how they were connected. I thought something else happened with the bones from rsd. didn't know it was risk of dystrophy from lack of movement. motivating information.
I wish you less pain and more relief also!

Sorry about the misspellings ,my iPad has it own power over me and changed my words,like I said before is kind like rsd,takes control of everything and when I noticed ,I can't fixed the errors any more,but hope you understood wht I was trying to said,yes English grammar us obviously not my mayor,but my iPad made it worse!!
Gentle and soft hugs,remember ,just reach us with your hands nd we re here for anyone who needs us.with love Jesika

thank you Jesika! don't sweat the typos and stuff - no worries! I am not concerned with that. I am just feeling blessed you all are so compassionate and patient and generous. thank you again and I hope you have a lovely evening!