Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-24-2007, 09:38 AM #1
sue k sue k is offline
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Hi Joan,
I woke up from the operation the same way you did. (I read your post on the other thread). Did they tell you that the RSD was caused by the nerve damage? Thats what they told me. I am now so confused by the posts about this. What do you think? I never had any signs of RSD until the nerve damage. Just wondered what you thought about this.

Love your hip sister Sue
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Old 09-25-2007, 10:55 AM #2
JOAN_M JOAN_M is offline
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HI Sue,
no, i did not have rsd until the nerve palsy i awoke with after the hip surgery, and i was told it was from the trauma to the nerve being stretched during surgery, which you and i obviously have since we both have the palsy. my leg just got more and more painful as the first few days went on. i was not officially diagnosed with RSD for several months though.
i try to look at all the angles of this monster with an open mind, but to tell you the truth, i do not ever dwell on how it happened. i find it better to dwell on how best to live with it. so i read, and i listen but i do not get all in a huff, because i know, as you know, that NO ONE really knows a darned thing! ha! that kind of always makes me laugh. not a single soul knows so why argue?
i would like to see more of how people cope, and how they keep a good attitudes, and how they deal with their families and doctors and lawyers ... and more about just life.
the only fact i know is i have RSD and have had it for so many years i can hardly remember what life was like before it, i work hard to keep my spirits up and survive ... that is what i know.
love your hip sister, joan
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Old 09-25-2007, 01:44 PM #3
sue k sue k is offline
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Hi Joan,
I don't see any sense to the argueing either. The reason I came on here was like you said. To learn how other people deal with this, how to stay positive and to learn how to live with this crazy RSD. I feel so lucky to have found a friend like you. I knew I would meet other people, but not someone just like me. You are a good friend. You know me better than anyone else.

Love your hip sister Sue
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