Even the greatest warriors lose a fight once in their lives.
If someone left you ,means that person wasn't the right for you, there always a purpose for everything ,now you need to focus and the much you need to regain about yourself.
Destiny place the right people at the right time,soon will be the right time ,for now ,rsd became to be your partner and you are not selfish,we are suffering too much and sure we can't only do so much,but selfish,we are not selfish. I always wonder who will ever step on our shoes just to try how long they can last and I bet no one will ever try at all.
Be you own person,be your best friend and love yourself by not allowing anyone hurt you because you are sick ,those who decide to leave are the weakest persons you will ever meet, only a true and honest soul will stay at your side,don't regret anything that happened good or bad, you overcome that's what matter.
Here is a huge and friendly community, left few moths ago for a misunderstanding , I realized lately it wasn't a big deal and the person who created the situation is not even here any more. Disappointment is everywhere but is up to us to make a difference in our life's and be a new advocate for rsd and help others,that's the best way to live our life's,offering support and be a source of comfort.
I'm also and rsd patient ,type 2 or label 2 now,but I still see days with a shinny sunny day and many others I can't even see outside my windows but I believe someone needs me and I get here or there, I'm a people person,my job was everything for me and I lost it due to my rsd but still hurts and I try to start all over again, I think I don't deserve this but it what it is.
Gentle hugs and always be hopeful and see the bright side ,there is always one,take care ,with love Jesika .

Jesika,

Thank you for the encouragement. Yes, it is true that we find out who we really are when faced with a condition like this. We find out who others are too, for good and bad.

I'm so sorry to hear you lost your job. I lost mine as well. It's my theory that we are meant for something bigger.

I have the type 2 as well, I find that interesting because I was told it is really rare.

If you don't mind, what have you tried that helps? Hurts?

My history is:

Discectomy/laminectomy l4
Many series of lumbar blocks, sacroiliac joint blocks
Anterior/posterior fusion s1-l4-l5
Spinal cord stimulator put in
Spinal cord stimulator taken out

Thanks and take care,
Wendy

Well, I had different treatments,physicals therapy, lumbar blocks , acupuncture ,medications ,scs is the best still in my case option but unfortunately had a second surgery to repositioned the battery from buttock to abdomen,now works much better and also taking my medications ,but physical therapy is essential and that I can't do too much,my injure foot has not cardlige and I have bone to bone rubbing ,scs covers nerve pain but no bone pain, I was suggested few moth ago a second device but I'm not ready for more surgeries ,is really exhausting and recovery takes a while, after the repositioning I had so bad luck,I had a gallbladder surgery also in my abdomen and gosh I woke up with such of pain,lucky I was treated so well by both dr and anesthesiologist ,they avoided pain the most the could and follow up my case real closely to prevent any further pain,but another scs,I'm not sure.
That helped ,also tens unit,if you can have much relief with scs tens units Is a great option,acupuncture as well work for many,not of me I was in agony during each therapy and hated so much those ugly and useful needles .
I also find meditation to work during flares ,I listen to soft relaxin music ,tibetan singing bowls works for me and don't take my whole pain away but relaxes me.
All treatments are different for each patients and also we al manage pain in different ways, I'm by my own choice not taking any stronger pain killer but tramadol and meloxicam , other than that my meds are not really strong, we all also manage meds differently,I had allergic reactions to hydrocodone, so no NorCo or Vicodin for me, but I guess I'm more pain tolerant but doesn't mean I don't have pain,hell yes,and many bad weeks but I try my best to be positive and let is pass,don't battle it ,just let the flares pass.
I hope I answer your question and helps you a little,now I have one,why your scs was removed?
Gentle and soft hugs,if you have questions I'm here don't mind just ask,we are family and we try to help,with love Jesika .

Thanks for letting me know what you've tried. I feel like I've exhausted a lot of treatments, but hope to still find the right combination for me. I'm not there yet, but I choose to believe I will get there.

I have tried the tens unit, with no real results. Nothing good or bad.

Yes, physical therapy is very important. Have you tried pool therapy?
I was in PT for a year, and the pool therapy was nice for me. However, my pain dr doesn't want me in any right now because he says I'm not in good enough condition.

I'm very into meditation, I spend at least an hour meditating without fail each day. So, I was interested to hear you have some success with Tibetan music bowls. In fact, I've looked at some and would have tried by now, but those suckers aren't cheap.

My spinal stimulator was taken out because I had constant stimulation in my ribs and a huge increase in the burning pain and crps spread. I'm rather thin so I was warned I might have issues. Lead migration was mostly to blame.

The next surgery recommended would be the drug pump, but I have major concerns because of my weight and also because the stimulator really screwed things up.

Hope you are having a good weekend. I saw you live in Ca and I have to say I am so jealous. If I could move anywhere, that's where I would want to go.

One more thing, I was looking into hypnosis, but I'm not very suggestible.
So, I dunno.

Also thought about acupuncture, but am concerned it could make things worse.
Was it really uncomfortable during? Does it hurt afterwards?

Hugs,
Wendy

Honestly ,pt was great,meditation works as well, recently I watch a movie called the secret also help,mostly educating your mind on focusing on things in a positive way,real,good by the way ,medications and relaxation does helps,but acupuncture for many did for me hurts as hell,not wouldn't get it anymore, I was almost crying and still remember with such of horror the last needle,years,but other people had benefits ,not me ,still wondering how I let that happening .
Well,I hope other treatments soon get some relief and also your meds work as ell,all combine makes a difference,sorry tens didn't work at all ,and I sure scs might be beneficial but maybe the rep didn't work enough in getting the best covered areas for you,sad when that happens. Everything can be risky ,but as long as dr follow an stricter protocol and about pain flares ,I thing a change of spreading is minimal but never know, always do what you know is bets for you,no all people react same way.
Hope you also good weekend and Cali weather is so crazy,is raining in August!!! well I like weather not too hot,not too cool,so is perfect for me now,as long as i can stay inside and not need to go out is fine.
And acupuncture in my case , won't ever happens.
Best wishes and gentle hugs,remember relax and rest as much as you are able,with love Jesika .

Oh wow! It sounds like acupuncture was really no good for you!

But, you never know, it could work for me. However, my gut says no and I have learned to listen. Our subconscious is way more powerful than our conscious mind.

I've watched The Secret many times now. I enjoy it too.

Also, when I meditate there are times I'm able to astral project, and it is AMAZING!!!
I used to be able to do it three times a week. But, for some reason I'm having a hard time letting go.

How has your weekend treated you?
Wendy

Oh wow! It sounds like acupuncture was really no good for you!

But, you never know, it could work for me. However, my gut says no and I have learned to listen. Our subconscious is way more powerful than our conscious mind.

I've watched The Secret many times now. I enjoy it too.

Also, when I meditate there are times I'm able to astral project, and it is AMAZING!!!
I used to be able to do it three times a week. But, for some reason I'm having a hard time letting go.

How has your weekend treated you?
Wendy
:Yahoo:

Hi,

My heart goes out to you. If you feel you need some additional help don't
hesitate going to the ER where out of control pain can be treated. Just
tell them you are not interested in being treated like a drug seeker but if sincere about wanting to know about CRPS, most hospitals have
access to obtain information on it. I know on one occasion my daughter
who had CRPS type 1 was having surgery for another medical condition
when one of the nurses asked her what CRPS was. The nurse left the
room then later returned after looking it up and expressed sympathy toward
my daughter. The world is full with its share of jerks but there are also
some wonderful and caring people in the medical profession as well. God
bless you. I know you are scared but you are not alone. May our loving
mother, father God hold you and be with you and comfort you during this
crisis in pain.

Joydee.
I'm so,glad ER,nurse took time to do a research for,your daughter, after my bad ER,experience,I carry with me a print out of what rsd means and also what precautions can be follow do to the serious pain we get. It's hard to reeducate dr ourself about rsd,Many dr don't even try to listen at all,but glad your experience was good.
I hope,many more ER facilities get prepare for patients like us, we do require so special way of handle needles ,blood pressures devices , injuries ,surgical procedure and we can't do it all by ourself ,thinks is ,educations is the key and we can only get the best knowing what really rsd means and how works.
Gentle hugs and hope better days with less pain.with love Jesika .