Thank you all for responding! I will take something from each post and use it in my treatment.

I am being treated at one of the nation's leading military hospital's that has much experience with neuropathic pain after treating wounded warriors from over 10 years of war. This being the case , the pain management Drs here are pretty aggressive when it comes to treating RDS/CRPS.

Totally forgot to mention that I also have a DVT in my right leg and am on anticoagulant medication....I know how does one forget something like that?!! Overwhelmed by everything and meds. My med list should have included Xarelto.

This is another reason why the push for the Ketamine treatment since I would have to go off the anticoagulant medication to have the nerve block done.

One of you nice responders asked what the marble therapy is...we use the marbles to learn movement in the foot by learning to pick up the marbles with the toes as well as roll the foot around on top of them with pressure. Different sizes are used and yes it hurts, but I kind of enjoy the calming nature of picking up the marbles with my toes and putting in a container.

Once again thank for all of your support and suggestions... I will look each one up.

Best to all of you in your fight, I don't feel so alone anymore! Thank you!

Terri

Also try to desensitize the area by touch gently different textures ,marbles,towels,feathers,some stones in your hand rubbing I the affected area but not any stones ,those stones that looked like marbles ,soft no rough, also a hair brush, textures that eventually makes that area less sensitive to touch ,obviously with care and if you feel not comfortable just try one thing at the time.
Follow also with your dr and ask if that is ok and they as,I can provide you with some massaging creams to do it at home,many dr do that as well,just to help that area to be less sensitive.
Gentle and soft hugs and hope weekend brig s you days of relief,from Jesika .

Hi & Welcome!, but as usual I'm sorry you had to join us with this.
I'll echo the the comments made by others on here, I had to go
through many types of treatments before ketamine would be "put
on the table" by my pain mgt. Dr.
It's on the table now, but I'm holding off because it's very cost prohibitive
& insurance won't cover any of it.
Like Lottie said maybe nerve blocks are worth trying first.
I've had over 25 of them now (over 1 1/2 yrs.) & they keep the pain
managed pretty well in combo with meds. The first 3-4 nerve blocks
were pretty dramatic improvement wise (that pretty much confirmed my
dx) but I've slowly hit a plateau since then.
Do be agressive like you are with P.T. but don't over do, it can be a set back.
FYI I don't post much b/c mine is in left hand & arm but I try to keep
up.