FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
08-05-2014, 11:51 AM | #11 | |||
|
||||
Member
|
Hey 100 posts! I'm a frickin' "Member" now!
|
|||
Reply With Quote |
08-05-2014, 05:07 PM | #12 | |||
|
||||
Member
|
LMAO That's fantastic!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
|||
Reply With Quote |
"Thanks for this!" says: | eevo61 (08-05-2014) |
08-05-2014, 07:47 PM | #13 | |||
|
||||
Member
|
Visioniosiv ,Congrats,a real journey full of education and supporting. Glad you decide to keep helping and also in I some ways ,be helped. Hope many more days of this and keep,going with the good job. Jesika .
__________________
. |
|||
Reply With Quote |
"Thanks for this!" says: | visioniosiv (08-05-2014) |
08-05-2014, 08:07 PM | #14 | |||
|
||||
Member
|
From my personal point of view, rsd specialist still can't figure it out why and how rsd happens and just try vaguely to,finds a reason but after so many researches ,saying rsd is autoimmune ot mental doesn't doe any good at all.
Instead ,we get real annoying and mad realizing this discussion is still happening in the medical fields.honestly I think ,no dr is able to tread rsd at all ,there is always something missing and that only make our journey more painful due to many changes and treatments approaches that really in many cases were unnecessary at all. Feels confuse and disappointing is normal for us, we many time try to convince our brains to regain control and it's hard when so many new researches are coming out and we just we confused. Rsd is in fact REAL ,no matter how many studies said is mentally or autoimmune , for us who are suffering constantly day by day it's and always will be real. I walked like many others a long road full of disappointments and dr who really care more about the benefit they will get by doing the most expensive treatment,is not for our benefit ,is for their packets and honestly ,did we get better for real? I don't even think so ,we keep,struggling and we will unless we take action and educate ourselves and speak up,never agree in something we don't believe is right ,always have questions and expect and answer,get that answer either ways,by being friendly with the dr or by being a complete .... ( bad word,you can add your favorite one) and keep insisting on getting a response and a really logical explanations. I'm tired as many for sure of all here,but we had to keep going always hoping for better days,the mind is really so powerful,we can do so much as long as we believe it can be happens. My last thing to add, no matter what's outer ,believe in what your hearts tells you and if you have doubts about something ,make the doctors clear any doubts but believe things can get better,only education and understanding RSD for real will let us know what is real,we are living proof ,RSD is so real. Genlte hugs and lots of love to all,Jesika .
__________________
. Last edited by eevo61; 08-05-2014 at 09:24 PM. |
|||
Reply With Quote |
"Thanks for this!" says: | Phaedra (08-05-2014), visioniosiv (08-06-2014) |
08-05-2014, 09:07 PM | #15 | |||
|
||||
Junior Member
|
Thanks for the discussion. Many good and valid points All of them well supported too. Mind over matter and living organic or tuning in to all your chakras it is all well and good and maybe to some extent works for some. I have been trying everything because workers comp doctors don't want to do anything. I have changed diet and tried meditation and talking myself out of panic attacks focusing on things that interest me. Just so maybe I will have a day that is painless. Ha hasn't happened yet. In fact when I do try to ignore what my body says and do push my self to do what ever it is I intend to do any way I end up in severe pain that night and have no spoons for several days. I am sorry I don't enjoy silkwood showers and trying to tell myself it is only water it doesn't really hurt. I have found however meditation does help me go to sleep but so sad I don't stay asleep. Dairy does cause problems, why? Even being outside in the sun hurts after 10 to 15 minutes
Any way. Thanks for the links and the interesting points and well versed discussion. I must say everyone who has posted to this does bring many good points to the table. Thanks to you all.
__________________
. . Phaedra |
|||
Reply With Quote |
"Thanks for this!" says: | eevo61 (08-05-2014), visioniosiv (08-06-2014) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Is it in my head or is it real?... | Movement Disorders | |||
Pain real bad!!!!!!! | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
How It Works About Us Contact Info Share real results with real patients for real dis | Multiple Sclerosis |