Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-14-2014, 07:41 AM #1
dealingwithtos dealingwithtos is offline
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dealingwithtos dealingwithtos is offline
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Join Date: Jan 2007
Location: Midwest
Posts: 192
15 yr Member
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I also have a SCS and have had it for about 4 years now. I also do take 3 other medications to help with the pain. I have a couple comments.
1. Everyone is different. You could have a very good experience with a SCS. Someone just wrote that they are only good for 3 years and then you're back to square 1. No, not necessarily. That's just one experience. There are many out there and there are positive experiences too. Not just negative.
2. Explore all options. Try other meds in conjunction with the gabapentin. Lyrica, Cymbalta, orphenadrine, venlafaxine, the list goes on and on. Many different options out there with varying side affects.
3. Get a second opinion. Get a third opinion if needed.
4. There isn't a cure-all out there. It's finding what works for you but also to remember that nothing will take away all of the pain.

I've had a very good experience with a SCS. I also work full-time, corporate environment and am successful. I do know that I wouldn't be able to function without it.

Good luck on finding what works for you. Patience is hard but it's worth it to stay working and moving.
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