Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-19-2014, 09:29 PM #1
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and thanks to all and sure she is resting in a happy and peaceful place ,not suffering any more ,I will be aback soon and appreciate all your thoughts and prayers ,keep me warm and feeling I'm surrendering by more family,you all ,thanks so much and see you soon ,with love Jesika .
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Old 09-29-2014, 11:33 PM #2
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Today sadly have to tell you all ,we loss another family member and this time I will stay ,I realized my body can't deal with so much. So stay behind at home a driving or flying will be too much for me ,but sure family already know I can only do so much.
Last Wednesdays also a sister friend who also advocate for rsd passed away and that touched me so close as well, I many times imagine a happy ever after even with rsd but life is real fragile and we never take the time to tell someone how much we care I will eventually back for now I just want to tell you all,
I LOVE YOU ALL my brothers and sisters, I don't want to leave one day and you never knew how much I care and how much you meant to me,thank you. with love Jesika
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Old 09-30-2014, 01:02 AM #3
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I'm so sorry for your loss Jesika. My thoughts and prayers are with you and your family. Sincerely, your friend, Renee.
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Old 10-01-2014, 06:15 PM #4
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Life keep adding more losses in hour family ,sadly another of my auntie passed this past Tuesday morning ,it hard to be at this point strong ,I even decided to stay here instead of traveling with the rest of the family out the country ,I can't handle long trip and my rsd is in full flare,I really need to slow down and take care of my symptoms ,I had experienced new ones but I'm sure is due to all he stress I had lately,thanks for the support and I'm trying to comeback and move on ,thanks and gentle hugs to all with love Jesika .
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Old 10-01-2014, 06:48 PM #5
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I am so sorry for your loss...please remember to take care of yourself during this hard time. My thoughts and prayers are with you and your family...
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Old 10-01-2014, 09:22 PM #6
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So sorry for your loss Jesika.
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Old 10-05-2014, 12:03 AM #7
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I have a friend recently telling me ,when it rains it's pours ,something like it ,I do know the wold saying very well, my family is having week after week this past,few weeks Several losses and we came from being funeral after funeral,many of those who do and still work keep requesting days off and is a sad to tell the reasons. We all have loss one member ,in laws ,close relatives ,blood related and even friends, I wonder why is happening.
I felt twice this past days and could be more scared, I tried to handle my sudden tremors and leg totally numb , is new for me , I was thinking stress might be the cause now I don't even have an idea why is happening ,my good leg is not responding , I know I do have rsd and still is not officially diagnose by a dr but is there , my buttock in same leg hurts as hell and I can't longer sit more than 30 minutes without pain,that was the spot where my scs battery was originally positioned ,dawn, rsd is really getting the best of me,sucks.
I still feel hopeful and thinking a new approach will, be beneficial ,but hard to find an rsd specialist ,I got approved already ,after all this bad news I think I didn't mentioned , I won my wc case on trial obtaining medical lifetime benefits and also,my compensations by laws and also a school retraining voucher ,obviously I can't go to school yet until I get better ,also a judge accepted my 40% disability on my right foot and ankle and rsd as well, my company wants z12% and no medical benefits Judge rules in my favor immediately ,I didn't called the trial ,my company did but I got lucky ,the judge knew rsd and also recommended apply for state disability right away and also Medicare for the areas not cover but also knowing is rsd he said ,make my rsd dr officially declare he other areas affected and come back and reopen my case again and we will start all over again.he was nice and even told me ,if I got fired before the trial ,I can sue my company base on ADA and recommended me to seek a professional attorney and follow a case ,I was terminate in June without an opportunity to get back to work since I was realized in May 2013 under medical limitations but was gives vague excuses ,still now ,hr didn't know I was terminated this past June. 2014 and I still had not getting paid off my sick time accumulated and vacations hours ,personal holidays ,I'm a union member and also my union misrepresented me ,I was inform union can also be included in my case ,now they union is trying to fix what they didn't since August 2011 when I reported I was hurt and company didn't sent me to a dr but after 14 days when I demanded to see an specialist ,I went by my own. They knew since the beginning and ignored me for two weeks ,at lest wc is done ,now I'm looking under my legal options on maybe a wrongful termination ,unpaid salary and union misrepresentations ,what a hassle , after all this stress ,I will add more , I was postponing everything due to the past family events ,but I guess I need to move on quickly and start that new journey.
Thanks so much for all the support and Kind words and condolences , I do feel comforted and also my relatives as well ,we are not over yet ,but I need to keep my rsd taking care and continue the fight to my rightful benefits after all rsd came with my injury and all is part of the same sad story ,wish me luck.
Blessings to all and loving gentle soft hugs. Jesika . thanks .
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