I have had one doctor and one nurse tell me that given my symptoms ( level 1 pain) and earlier treatment ( 110 days) their is a good chance my crps won't spread.

However I can't pin down a statically sound estimate of spreading in any circumstance. Is their a resource that might be of help in understanding this aspect?

As an example of confusing and contradicting material. **
In other places I read about studies where the spread was around 50%. Yet other sources casually (no sources) proclaim that "CRPS generally is limited to one limb"

Given I have crps in my toe, was diagnosed with it 110 days in, is their any way for me to get a likelihood it will spread in my lifetime?

Links to resources and studies welcome. Thanks for your support.

I don't think there is anyway to predict possible future spread or not.

A second bump, surgery or injury could possibly activate or aggravate a spread.
Then again it may not happen at all.

I agree with this statement, and I would add that perhaps even a major life stress could cause spread. I went years before I experienced spread. I even had surgery on the original limb (knee) without spread, and then years later slowly the progression started.

With others spread is more rapid, or on the other hand, nonexistent. It's crazy. It is my understanding that the incidence of spread is rather low. So perhaps there is some sort of good news.

Try not to marinate on the idea of spread. Perhaps it will never happen.

The others are correct. There is no way to predict if or when spread will happen. I went for 16 years with it located only in the right side of my face. New injuries brought on spread and progression. Some experience a lot of spread, like me, and even full body and some experience no spread at all.

And yes, early treatment is very important!!

Wishing you the best!
Nanc

The best source I can find on spreading (though aimed at type 1 crps) is called the 2014-outcome-crps-type1-systematic-review. It seems to be a review of over 1500 papers on the subject, which are then filtered on quality measures. I plan on reading it more, but what i'm gathering is that their are likely sub-categories of CRPS. Or at least thats the only way I can rationalize information like the following from that study:


However, the estimations on spread, remission, pain-increase, etc... paint a much better picture then those posted by a lot of other sources and with a lot more weight.

Just be a bit careful using this as a source of information and read it with the health warning it requires. The study only looked at 18 previous research studies and if you read it you will find there were lots of problems with the studies they reviewed as well as bias in 4 of them. In fact, the conclusion even says:

"Overall, the quality of the evidence was poor, and the data should be interpreted with caution"

Anyone just reading the abstract would have little idea of the limitations because it's not unusual for an abstract in a research paper to be mismatched with the actual conclusions and findings of the study itself.