Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-24-2014, 08:07 PM #7
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Adalaide Adalaide is offline
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Adalaide Adalaide is offline
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Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
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I have found nothing I can take day to day that I don't have a severe reaction to that is so bad that I have had to stop taking it. The only thing I'm on now is tramadol which I take some days and some days I don't. I find it works really well at knocking out the pain and as long as I only take one it doesn't make me weird but if I take two I get loopy as crap. I only take two if I'm in "throw myself off a cliff" pain. I know I'm going to spend my life in pain so a fair number of days I don't take any because I can live with some pain, but when I have flares I may find myself taking it four times a day for a week straight, then not at all for a week. If I'm going to be in the car for more than 10 minutes I take it before I go because it's the difference between coping and sitting in the passenger seat trying to daydream, trying not to distract my husband from moaning in pain. So yeah, I highly recommend tramadol if you can get it and see if it works for you.

I also use natural methods of pain control. I use essential oils. (frankincense and ylang-ylang for me, but you can see what you want to try for you if you're into the hippie thing) I use heating pads, often and frequently. And (warning this is not PG!) I also use sex and orgasm. It's a great natural pain reliever that is instant and lasting. It has the added benefit of also being fun and free.
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Celiac DX Dec 2012; over 30 years symptoms to DX
CRPS DX March 2014; 5 years, 1 month from first symptom to DX
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