Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-21-2014, 08:08 AM #1
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Sounds to me to be more of a circulation problem than CRPS. Take note that this must be confirmed by a doctor which I'm not. We're just trying to spitball some help your way.
Consider yourself fortunate if turns out not to be CPRS because as everybody here can testify to how much this monster makes everyday life suck in so many ways.
Be well and I hope you find relief...
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Old 09-22-2014, 11:24 AM #2
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Thanks Russell Neurochic and zooester,

@Russell, any idea's how I could figure out if it was circulatory? Something I could ask my doctor when I see him?

I wanted to update this thread with the last couple days. I hope i'm not coming off as selfish, talking about these things goes a long way to calming my nerves.

9/17/2014 ~ I did some light (for me) weight lifting of 125 pounds. I also went on several long walks. No pain or swelling.

9/18/2014 - 9/23/2014 ~ I have trouble sleeping. I seem to stay asleep for like 2-3 hours then wake up and get back to sleep after about an hour or two. I walk up slightly groggy. It's possible i dose in and out in some of that time. This might be due to stress, but I feel like I was more stressed last week and slept better. I have been using Lidocaine patches at night... maybe they are causing the trouble?

I also have an increase in muscle twitches in the foot. I get about 2 a day. Their not painful, their sort of like what a muscle does after a hard work out.... maybe that's all it is. Sometimes I get them at night. I got one odd episode yesterday after stretching my toes for a good 10-15 minutes.

Tingling sensation on and off. Tingling seems to happen mainly when I elevate my leg.

Dog stepped on my foot caused it to flare up (redness, pain 1/10) for about 15 minutes.

Again, writing this out and hearing peoples thoughts helps. Also my doggy helps!

Last edited by HarryDresden; 09-22-2014 at 03:36 PM.
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Old 09-22-2014, 12:50 PM #3
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HD I think everyone that's posted on your behalf is right. It's good that you wrote out your thoughts and experiences in such detail - that in and of itself tends to be very therapeutic for any condition. But it really doesn't sound like CRPS based on your description. We ain't doctors but we know CRPS/RSD better than they do in a lot of ways -- particularly in that they aren't experiencing it on a personal level. If you had it, you'd know it more definitively.

Pretty impressive lineup of thoughtful answers. This place is amazing.
Live your life HD but don't forget us. It will make it sweeter, I promise.
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Old 09-27-2014, 04:57 AM #4
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Could have been a case of "Mild CRPS". In these very rare cases, CRPS can go away quickly. Usually within 4-6 weeks. The symptoms of "mild crps" are similar to "Regular Crps". The only difference is that the symptoms are not generally as severe. I would continue to work with your doctor, and maybe ask him/her if physical therapy would be beneficial. I have full blown CRPS, I took PT for 3-4 months, it can be pivotal in helping to keep mobility and help stave off severe atrophy.
You wanna know the funny truth? My daily
PT routine is comprised of things like typing my shoes, gentle house work, and silly things like that!
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Old 09-27-2014, 09:59 AM #5
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I don't understand .. 4 months and 2 days ago you broke your toe. Since then it has improved with some minimal pain and twinges, some redness and some ROM issues - this is not in anyway considered "pain out of proportion to the injury" which is the main diagnostic symptom of CRPS. Just because you have a temperature difference means nothing unless you also have "pain out of proportion to the injury". All of the symptoms you have can be easily explained because of your toe fracture - to get to the diagnosis of CRPS the symptoms ARE NOT explained by any other condition or injury AND pain is out of proportion to the injury/trauma. As far as you have described in detail NONE of this fits the diagnosis at this point mostly because you have IMPROVED within the normal time frame for a healing fracture of any kind. You also do not have the relentless pain caused by CRPS but rather pain that is relieved by elevation, rest etc., at least by what you have described.

It is a shame that any of your doctors would have suggested CRPS/RSD at this point - this [in my opinion] is why CRPS/RSD gets a bad name.

You are healing [at least from your posts] - with toe fractures often the only course of treatment is taping it against the next toe until the bone heals, unless it is severely displaced and then other treatments would be considered. Forget CRPS .. get on with life.

If you feel you need to dwell on this then the more important thing you should look at is the osteoporosis in your toes. At your young age this would be more concerning and certainly worth investigating further. It is not caused by CRPS because you do not exhibit any of the other symptoms of CRPS that would cause this severe symptom so quickly. Injecting a steroid into an area that already has osteoporosis would be concerning to me since there is clear evidence that steroids can cause osteoporosis..

You asked in another post about the nerve block - in my opinion this is done for people who have refractory pain and have not improved with other less invasive treatments [this is not the case for you as you have described]. What exactly do you expect to gain from a nerve block? As far as you have described there is nothing this block would do for you as it is intended.
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Old 09-27-2014, 11:42 AM #6
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Quote:
Originally Posted by zookester View Post
I don't understand .. 4 months and 2 days ago you broke your toe. Since then it has improved with some minimal pain and twinges, some redness and some ROM issues - this is not in anyway considered "pain out of proportion to the injury" which is the main diagnostic symptom of CRPS. Just because you have a temperature difference means nothing unless you also have "pain out of proportion to the injury". All of the symptoms you have can be easily explained because of your toe fracture - to get to the diagnosis of CRPS the symptoms ARE NOT explained by any other condition or injury AND pain is out of proportion to the injury/trauma. As far as you have described in detail NONE of this fits the diagnosis at this point mostly because you have IMPROVED within the normal time frame for a healing fracture of any kind. You also do not have the relentless pain caused by CRPS but rather pain that is relieved by elevation, rest etc., at least by what you have described.

It is a shame that any of your doctors would have suggested CRPS/RSD at this point - this [in my opinion] is why CRPS/RSD gets a bad name.

You are healing [at least from your posts] - with toe fractures often the only course of treatment is taping it against the next toe until the bone heals, unless it is severely displaced and then other treatments would be considered. Forget CRPS .. get on with life.

If you feel you need to dwell on this then the more important thing you should look at is the osteoporosis in your toes. At your young age this would be more concerning and certainly worth investigating further. It is not caused by CRPS because you do not exhibit any of the other symptoms of CRPS that would cause this severe symptom so quickly. Injecting a steroid into an area that already has osteoporosis would be concerning to me since there is clear evidence that steroids can cause osteoporosis..

You asked in another post about the nerve block - in my opinion this is done for people who have refractory pain and have not improved with other less invasive treatments [this is not the case for you as you have described]. What exactly do you expect to gain from a nerve block? As far as you have described there is nothing this block would do for you as it is intended.
Zookester-
I'm sure he just wants to verify and get all the information he can before talking to the doctor (s) about his diagnosis. We here all know what it was like to have them tell you that, know nothing about it, then proceed to find out more and scare the crap out of yourself! Lol. I too do not think he has Crps. As if the descriptions HD describes do not point towards crps in the least bit. It's possible that it could be some sort of Neuropathy, but don't be too harsh on him.
after all, it was the doctor who gave him that diagnosis. It's baffling why the doctor would've performed a Nerve Block that soon after breaking his to. I think the doctor needs to do a LOT more research on Crps before jumping to conclusions and giving someone a life altering diagnosis!!!!


*****HD !!!please!!! Go get a second opinion, preferably a !!!!!Specialist!!! Heck, since you only broke your toe, go see a reputable Orthopedic/Orthopedic Surgeon! ! The most common place to get crps is after some kind of orthopedic surgery! But I don't think you should be wasting your time and money on a doctor who I feel gave you a completely unfounded diagnosis!
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