Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-14-2014, 06:09 PM #1
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Link to the McGill Pain Scale:

http://www.rsdhope.org/mcgill-pain-i...in-ranked.html

That's certainly what the majority of us experience. The only type of pain that is supposed to be more severe is from terminal cancer.
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NurseKris (11-14-2014)
Old 11-14-2014, 07:08 PM #2
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I would like to point out, that erythromelalgia, is a possibility for your foot.

http://emedicine.medscape.com/article/200071-overview

This condition is often not diagnosed accurately by doctors today.

Also as far as nerve damage or Peripheral Neuropathy goes, there are over 100 causes of PN. In your case trauma appears to be likely.

To heal from damage to nerves you need certain nutrients.
Vit D
B12
folate
B6
Omega-3 fatty acids (flax oil and fish oil).
magnesium

If your diet is lacking these nutrients healing will be poor, or slow. The feet are well known to be slow in healing anyway since circulation to them is poor.

Tight shoes, tight lacing habits, or wearing boots, that constrain the feet alot, are not good for circulation that the feet need.

RSD is only one outcome from a foot injury. And this is statistically not nearly as common as Peripheral Neuropathy.
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Old 11-14-2014, 08:27 PM #3
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Quote:
Originally Posted by mrsD View Post
I would like to point out, that erythromelalgia, is a
possibility for your foot.


http://emedicine.medscape.com/article/200071-overview

This condition is often not diagnosed accurately by doctors today.
This is very interesting. Some of the symptoms don't seem to match mine (itching,
I tolerate heat just fine), but many do (burning/warmth sensation, tenderness, swollen,
redness, pain walking, cooling and elevation help)

Quote:
Also as far as nerve damage or Peripheral Neuropathy goes, there are over 100
causes of PN. In your case trauma appears to be likely.
Sure, I haven't had time to read about PN.

Quote:
To heal from damage to nerves you need certain nutrients. Vit D B12 folate B6
Omega-3 fatty acids (flax oil and fish oil). magnesium

If your diet is lacking these nutrients healing will be poor, or slow. The feet
are well known to be slow in healing anyway since circulation to them is poor.
Hmm, For my own edification I made sure I get some foods from each of the groups
you listed. I think i'm doing ok.

Vit D - My internal doctor just informed me i'm a little low in this, despite my
glass of milk everyday for the last month. Maybe i need more sunlight?
B12 - I eat lots of salmon, red meat, milk
Omega-3 I love salmon, i eat it at least twice a week.
folate - I eat lots of fruits and veggies
B6 - Beef, avocado's, spinach, bananas, fish, pistachios

Though, when i was injured i was eating a lot less fish, milk, and a lot more
Mediterranean food.

Quote:
Tight shoes, tight lacing habits, or wearing boots, that constrain the feet
alot, are not good for circulation that the feet need.
I have been wearing sandals and just bought a pair of super wide toe box shoes
which i have great hopes for. I live in north so winter is coming.

Quote:
RSD is only one outcome from a foot injury. And this is statistically not
nearly as common as Peripheral Neuropathy.
[/QUOTE]

Yea, I keep telling myself how unlikely this all is!
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Old 11-14-2014, 11:53 PM #4
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There is not enough vit D in milk to
Provide the amount you need daily.
Have a test asap and get a level so you
Can supplement with D3 at a proper dose.
Do not use D2 which doctors still prescribe.
Low D will impair any bone healing.

Low D promotes osteopenia and osteoporosis.

If you drink alcoholic beverages this also
Affects the feet and nerves. Same with smoking,
As smoking reduces blood flow to the legs and
Feet.
The dose for D3 is 1000IU daily for every 10 points
You need to raise. Use 50 as your goal.
So for example-- a level of 20 needs 3000IU daily.
Also, go to Walmart and get the Morton Epsom lotion
And apply to the top of your foot and ankle about
A quarter sized dollop and rub it in daily. This will help with
Pain and swelling better than epsom salts. $5.95 in the first aid
Section.
Sorry to be brief but typing on this phone is difficult!
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Last edited by mrsD; 11-15-2014 at 12:21 AM.
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Old 11-15-2014, 12:38 AM #5
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Quote:
Originally Posted by mrsD View Post
There is not enough vit D in milk to
Provide the amount you need daily.
Have a test asap and get a level so you
Can supplement with D3 at a proper dose.
Do not use D2 which doctors still prescribe.
Low D will impair any bone healing.

Low D promotes osteopenia and osteoporosis.

If you drink alcoholic beverages this also
Affects the feet and nerves. Same with smoking,
As smoking reduces blood flow to the legs and
Feet.
The dose for D3 is 1000IU daily for every 10 points
You need to raise. Use 50 as your goal.
So for example-- a level of 20 needs 3000IU daily.
Also, go to Walmart and get the Morton Epsom lotion
And apply to the top of your foot and ankle about
A quarter sized dollop and rub it in daily. This will help with
Pain and swelling better than epsom salts. $5.95 in the first aid
Section.
Sorry to be brief but typing on this phone is difficult!
The Epson Salt lotion can also be purchased on Amazon.
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Old 11-15-2014, 08:47 AM #6
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Yes, thanks....they sell Morton on Amazon too, but you have that shipping to deal with. (unless you buy $35)

I've heard that Walgreen's is now carrying Morton's too.

The magnesium is absorbed quickly from Morton's. I use mine every day!. It works within 5 minutes for me for neck spasms and even reduces tinnitus I sometimes get which is annoying.

When inflammation is present blood flow gets all mixed up and often the feet and fingers don't get the nutrient they need. So oral supplements tend to fail then. The lotion bypasses most circulation snafus and gets to the target very well. It even takes down swelling for me. The lotion is so convenient too. A wonderful little miracle for only $5.95!

CVS used to make one, but they discontinued it. The lotion base was not as efficient either in releasing the magnesium IMO.

Epsom-IT tends to be much more expensive and I haven't tried it.
Also there is a cream from Kirkman, but that is pricey too.
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Old 11-15-2014, 09:06 AM #7
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@Harry:

Harry, you know, people are all different genetically. They have subtle, but different chemistries all directed by DNA.

Hence diagnosis of some disorders remains observational...and hence subject to interpretation, and opinion. Diagnosis in these cases, may really just be an opinion by the doctor.

The foods we eat in regular amounts do not have high amounts of nutrients in them. When you are sick or injured and have tissue damage, there may not be enough nutrients absorbed from your food to get to the periphery...that is why PN attacks the feet and hands most commonly first.

I suggest you take therapeutic amounts of fish oil or krill oil until you have healed better.

Also there ARE studies from Europe about using Vit C for RSD prevention. Some posters here even post about IV C for RSD management. In the past we had a poster Vic who recommended another antioxidant... grapeseed extract.
C and grapeseed scavange free radicals which are numerous after injury. They are inexpensive and benign with no side effects. I think they are worth a try in your case to enhance healing. The doses suggested for this were, 500mg a day or 1000mg a day for 2 months. A dose for grapeseed extract would be 500mg -1000mg a day.

This is just one study on the Vit C --there are several papers on PubMed about this:
http://www.ncbi.nlm.nih.gov/pubmed/19840748

Keep in mind that not all research or papers are totally honest also. There is much coming out about manipulation by Big Pharma and Device manufacturers slanting studies in their favor.
Merck went so far as to create a fictitious medical journal showing their products favorably and released it in Australia.
There was a doctor in California who fabricated post surgical pain papers in favor of Pfizer products. And a Japanese anesthesiologist who published over 180+ false papers.
Many drugs today were manipulated this way. There was a huge controversy among journal publishers not too long ago where doctors names were used without their permission on study titles of drugs, so that the papers would have more weight when used by drug reps to detail those products. This ghostwriting was pretty rampant at one point. Harvard had a huge scandal in their child psychiatry department over use of antipsychotics in toddlers! example here:
http://ethicalnag.org/2010/10/23/toddlers-on-drugs/

The human body seems to be resistant to labeling and generalizations. In the case for erythromelalgia, some patients have developed it out of the blue, or just after an exercise workout. An obvious injury lacking for them. So one really needs to remain open to other causes for a problem. Prematurely focusing and labeling something closes doors for healing, exposes you to unnecessary invasive treatments, etc.
Thinking outside the box may open a path for better healing for you. (doctors don't really "heal" you know. They objectify, label, and give drugs for symptoms. But they don't really heal, YOU heal yourself).
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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Old 11-16-2014, 02:18 PM #8
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Quote:
Originally Posted by mrsD View Post
There is not enough vit D in milk to
Provide the amount you need daily.
Have a test asap and get a level so you
Can supplement with D3 at a proper dose.
Do not use D2 which doctors still prescribe.
Low D will impair any bone healing.

Low D promotes osteopenia and osteoporosis.

If you drink alcoholic beverages this also
Affects the feet and nerves. Same with smoking,
As smoking reduces blood flow to the legs and
Feet.
The dose for D3 is 1000IU daily for every 10 points
You need to raise. Use 50 as your goal.
So for example-- a level of 20 needs 3000IU daily.
Also, go to Walmart and get the Morton Epsom lotion
And apply to the top of your foot and ankle about
A quarter sized dollop and rub it in daily. This will help with
Pain and swelling better than epsom salts. $5.95 in the first aid
Section.
Sorry to be brief but typing on this phone is difficult!
Based on your advice and my doctors i picked up some vitimin D3, omega3 fish oil and a multivitimin. Thanks again for the advice.
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Old 11-17-2014, 12:46 PM #9
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http://www.rsds.org/Research_Article...neuropathy.htm
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Old 11-14-2014, 08:05 PM #10
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Quote:
Originally Posted by LIT LOVE View Post
Link to the McGill Pain Scale:

http://www.rsdhope.org/mcgill-pain-i...in-ranked.html

That's certainly what the majority of us experience. The only type of pain that is supposed to be more severe is from terminal cancer.
I admit I don't understand how to view my condition in lue of the McGill Pain Scale. Maybe the McGill scale reflects the worse case?

Last edited by HarryDresden; 11-14-2014 at 10:34 PM.
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