Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-12-2014, 08:15 PM #1
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ShaggyChic_1201 ShaggyChic_1201 is offline
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Join Date: Sep 2014
Location: Midwest, USA
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10 yr Member
ShaggyChic_1201 ShaggyChic_1201 is offline
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ShaggyChic_1201's Avatar
 
Join Date: Sep 2014
Location: Midwest, USA
Posts: 86
10 yr Member
Default Hand / arm involvement ... tips/tricks

For those with RSD/CRPS in your hand/arm and are able to get around, what are your tips and tricks to not screaming in pain everytime you have to touch something?

I've sorta figured out how to keep my forearm safer. Since air/clothes touching my skin is so painful, I buy footless tights (size s/m), cut of the legs, make a finger hole and wear them. I use the self-adhering stuff they use to wrap your arm when you have blood drawn to keep it from falling down. It's a balancing act - can't make it too tight b/c that sets off waves of pain, but too loose means I have to pull it up and that defeats the purspose.

My bigger problems are I can't bear to let my arm hang down, but can't put it in a pocket either b/c my hand hurts so much. I use a homemade sling (larger so I don't have to keep shifting my arm, and lined in supersoft fleece) if I'll be standing or walking for more then 15-20 minutes. This in turn causes cramps along my back and ribcage. This pain seems to intensify my arm pain, but w/o the sling my arm is prone to dislocating and that is a whole pandora's box of worms and pain, so it's the lesser of two evils.

I haven't figured out what to do about my fingers tho. A glove seems too affected and Michael Jackson-ish and it would get in the way of doing things, which would ruin the fantasy that I can still function in the world.

I'd love to hear other ideas!

Air hugs to all
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