Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-16-2014, 10:31 AM #1
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Originally Posted by visioniosiv View Post
I'm one of the fortunate ones whose CRPS resolved (Jesika don't I count???). My basic advice for your particular situation (which you did a heck of a job detailing BTW) is:

1) mirror therapy coupled with ROM movement - 10 mins 5x daily. See where you are in 2 weeks and go from there.
2) massage/desensitization techniques (can be combined with mirror therapy). Actually - desensitization is not critical in your case based on the mildness of your symptoms.
3) 50/50 DMSO/vegetable glycerin applied to the area 3x daily. I made my own and can provide a link to purchase quality 100% DMSO if interested. (no monetary benefit to me lol)
4) NAC 600mg 3x daily, or a boosted Vitamin C regimen, or grape seed extract (not sure on dosages there having not used it myself but have read studies and anecdotal evidence that it is a highly potent antioxidant.)
5) Take a look at your overall diet and limit caffeine, alcohol, and inflammatory foods. You will know which foods are inflammatory by how your foot reacts if you pay attention.
6) Take a look at your overall environment and pay attention to where the most stress arises. Seek out and establish a positive environment for yourself. Do stuff you love. Get out in nature. Play your favorite uplifiting music. Do it for you. Ironically, being selfish to heal yourself is the most selfless thing you can do. Live your life and revel in it dude.
7) Now that you know the worst that can happen having been on this forum and incessantly researching multiple studies, let it all go and allow yourself to heal up.
I'm deeply sorry that I forgot to mention you,I had several a days with flares and also as you know suffer three family members losses I the past month,it was and is a hard time for me but I want to be here and get back not track and try my best to help but wasn't my Intention to,leave you out,so sorry but I'm sure you do understand ,thanks so much for the support and again ,you are also in remission but my Brain got clog just like other part on my body , sorry and hope to keep helping the best way possible.gentle hugs and lots,of love from Jesika .
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Old 10-16-2014, 10:41 AM #2
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Originally Posted by eevo61 View Post
I'm deeply sorry that I forgot to mention you,I had several a days with flares and also as you know suffer three family members losses I the past month,it was and is a hard time for me but I want to be here and get back not track and try my best to help but wasn't my Intention to,leave you out,so sorry but I'm sure you do understand ,thanks so much for the support and again ,you are also in remission but my Brain got clog just like other part on my body , sorry and hope to keep helping the best way possible.gentle hugs and lots,of love from Jesika .
No worries Jesika I've been to brainfogland myself. I know you've had a really rough patch and hope you are feeling better every minute
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Old 10-16-2014, 10:38 AM #3
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Quote:
Originally Posted by visioniosiv View Post
I'm one of the fortunate ones whose CRPS resolved (Jesika don't I count???). My basic advice for your particular situation (which you did a heck of a job detailing BTW) is:

1) mirror therapy coupled with ROM movement - 10 mins 5x daily. See where you are in 2 weeks and go from there.
2) massage/desensitization techniques (can be combined with mirror therapy). Actually - desensitization is not critical in your case based on the mildness of your symptoms.
3) 50/50 DMSO/vegetable glycerin applied to the area 3x daily. I made my own and can provide a link to purchase quality 100% DMSO if interested. (no monetary benefit to me lol)
4) NAC 600mg 3x daily, or a boosted Vitamin C regimen, or grape seed extract (not sure on dosages there having not used it myself but have read studies and anecdotal evidence that it is a highly potent antioxidant.)
5) Take a look at your overall diet and limit caffeine, alcohol, and inflammatory foods. You will know which foods are inflammatory by how your foot reacts if you pay attention.
6) Take a look at your overall environment and pay attention to where the most stress arises. Seek out and establish a positive environment for yourself. Do stuff you love. Get out in nature. Play your favorite uplifiting music. Do it for you. Ironically, being selfish to heal yourself is the most selfless thing you can do. Live your life and revel in it dude.
7) Now that you know the worst that can happen having been on this forum and incessantly researching multiple studies, let it all go and allow yourself to heal up.
thanks a lot for the suggestions! I'll write to later if I have any questions
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Old 10-16-2014, 10:01 AM #4
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Originally Posted by HarryDresden View Post
For instance, the tingling, warmth, redness, and electric tingles in the foot weren’t present in the first couple months, but have become frequent (daily) but are relatively unpainful (1-2/10).
Your body is bio-electric HD. Google "piezoelectricity" for a fun time.

The electric tingles, if not overtly painful, may actually be symptoms of the nerves in your foot healing. I have experienced both the electric shock/shooting spasm/lightning strike level 10 out of 10 type pain, and warm electric tingles as my nerves regenerated. There was a very marked difference between the two for me.
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