Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-16-2014, 09:52 PM #1
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Ice for me is the worse tigger combine with stress,no ice ,and yes is catchy and funny ,ice ice maybe,lol can't helped .
Try not to use ice and in some cases even heat can create issues ,like the once I had with heat rash and bumps around my belly and back,hurt and are making my surgical scars hurts real bad.
I guess avoid ice and use what makes you feel comfortable is ok as long as you don't hurt yourself .
Many of us use warm or Luke water with Epsom salt to reduce swollen and also relief some pain ,specially that awful needle pinching sensation and burning pain.
Ask your pmp or physical therapist how to desensitize your rsd affected areas ,is real important to get the area less sensible to touch or even to get hit by he water , needs to get treated gentle and a therapist is your key to accomplish that goal,rsd require to understand the different stages we are going through ,isn't easy at all but not impossible to be handle with care .
Gentle warm soft loving hugs from Jesika ,remember ,desensitizing is real important .
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Old 10-17-2014, 06:14 AM #2
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Thanks everyone!

I don't usually bath because I struggle to get back out, the CRPS started after a knee replacement and my other knee is useless and so I can't walk anymore.
If I do bath, I have to let the water out whilst still in the bath and dry off and then dry the bath, that gives me some grip and my wife then helps me out, all of that leaves me ready for a sleep and in more pain!

Its weird because I used to wear shorts all year round, the cold never bothered me, but now I'm always under a duvet.

I shall try the Epsom salts, thank you
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Old 10-18-2014, 12:06 PM #3
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Epsom salts and water to the rescue again! In my mind the reason the baths help us has to do with the pressure the swelling causes. The warm water pushing against the body I think helps our lymph system to drain away some of the fluids.
I know about the getting in/out of tub problems if you can swing it and what I'd like to get is a walk-in type tub. I think that would help the most since the deeper water at the feet would increase the water pressure.
If you can get a chair near your tub you could always just put your feet in for a soak.
Good Luck and best wishes
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Old 10-18-2014, 02:37 PM #4
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Quote:
Originally Posted by picobill View Post
Epsom salts and water to the rescue again! In my mind the reason the baths help us has to do with the pressure the swelling causes. The warm water pushing against the body I think helps our lymph system to drain away some of the fluids.
I know about the getting in/out of tub problems if you can swing it and what I'd like to get is a walk-in type tub. I think that would help the most since the deeper water at the feet would increase the water pressure.
If you can get a chair near your tub you could always just put your feet in for a soak.
Good Luck and best wishes
I think the magnesium helps as well as the steady warm pressure. That's why the Epsom salt lotion works AND why I'm pretty much pain free in warm ocean water.
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Old 10-19-2014, 05:23 AM #5
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I would love to have a swim in the sea, I used to always swim off the beach near us but its not warm, I live in Southend which is on the Thames estuary, its still a nice swim in summer but I haven't been for a few years!

I was reading on a website about salt water swimming pools and its sounds incredible, but I guess I will have to make do with the bath
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