Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 10-10-2012, 02:55 PM #1
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
Default Friends? Maybe not

Hi, I was diagnosed with RSD a couple of months ago. I know that I have had it longer because I have been in pain for over a year. It gradually got worse until I could not work or focus anymore. I have been through some real hard times over the past few months. I went out on medical leave in May and came back to work in early July. A lot of people that I though were my friends don't really seem interested in spending time with me anymore. I don't get invited out to lunch like I used to. They ignore me or barely say "hi" once in a while. It makes me sad that they treat me this way. I feel like a lot of the people in my office are acting this way towards me. It is hard enough to deal with the ongoing pain issues I have (it is still bad) but to have "friends" treat you like this is wrong. Maybe I don't smile as much anymore because I am hurting all of the time, but I am still me. Has anyone else had friends or suppsoed friends act like this and basically ditch them?
lexiegirl250 is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 03:24 PM #2
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default

I to lost a lot of so called friends because of my disease. I wasn't invited to go anywhere either. I thought it was because of my rollabout. (which I still believe) Since then I found I only have one friend that wants to do anything with me and the other lives out of state.
I know it is hard to except, but it has something to do with them not understanding our disease. It is not like cancer or a broken bone. Try inviting some of them or even one of them to lunch and talk about crps. They will realize you really haven't changed. You just handle things differently.
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 03:34 PM #3
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
Default

It is hard because it is just so isolating.
lexiegirl250 is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 03:36 PM #4
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default

Yes, I know. I got to a point where I requested to be put on an antidepressent
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 03:38 PM #5
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
Default

I am at that point. I am waiting to get in to see a pain counselor.
lexiegirl250 is offline   Reply With QuoteReply With Quote
Old 10-23-2014, 11:37 PM #6
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
Default left in the dust also

I have been dealing with crps for four years. I too was left in the dust as far as friends go. My crps affects my right hip and leg which affects my ability to do alot of things. I just cant keep up with them anymore. My family included. We had to really come to terms with this because i cant mother them the same as before. Some days i cook, some days i dont. The house isnt as clean either. I dont go dancing, hiking, or take road trips. I am not the old me. I've had to find new hobbies which led to new friends and slowly i am rebuilding my life based on my abilities. Good friends hold on thru the turmoil and metamorphasis, others just dont. Try arranging something with your friends that you can manage. If not a home cooked fancy meal, maybe pizza or a drink after work.
happygirlpa is offline   Reply With QuoteReply With Quote
Old 10-24-2014, 09:41 AM #7
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Default

Welcome happygirlpa.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 05:30 PM #8
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello Lexie girl

No it isn't right that your co-workers treat you with indiffernece. Sometimes when health issues present, you find out who your real friends are. You will make some friends right here. Ones that won't abandon you, or think bad of your because of RSD and pain. Many of us live with pain and came here for the same reason. Have heart, we care. Keep posting and making yourself comfortable on the site. Talk to anyone you want, and ask all the questions you care too. I wanted to make you feel welcome. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 05:32 PM #9
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
lexiegirl250 lexiegirl250 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 24
10 yr Member
Default

Thank you Ginnie. Hug right back to you. It is nice to talk to people who get just how bad it is.
lexiegirl250 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-10-2012)
Old 10-10-2012, 06:33 PM #10
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
15 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
15 yr Member
Default

Lexie:

Unfortunately, what you are sadly experiencing is very common with CRPS.

I have had so called "friends" visit or call less since my diagnosis and struggles and I've even had a few of my friends question my disability (behind my back of course which is convenient isn't it).

That is what many of us are up against here. Those old friends are in the rear view mirror. I have come to terms that I truly don't need them.

My TRUE friends understand and have been there for me since the diagnosis (which took a whole lot of time mind you).

Those are the only friends that matter. We all find out who they are. The others are simply negative energy, and are not worth it. Let them go. I've found that in life you only need a few good friends. And FAMILY.

Good luck to you, and good luck to ALL of us!
birchlake is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lexiegirl250 (10-11-2012), Vrae (01-04-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
new here- looking for help- friends ausbel New Member Introductions 5 01-05-2011 12:21 AM
Need some friends befuddled2 Bipolar Disorder 15 10-13-2008 02:06 PM
Friends turn out to help artist Chun Photo gallery: Friends help ailing artist Peggy BobbyB ALS News & Research 0 03-10-2008 10:57 AM
Hello my friends RisibleGirl Traumatic Brain Injury and Post Concussion Syndrome 3 02-09-2008 11:29 PM


All times are GMT -5. The time now is 11:41 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.