Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-06-2007, 09:23 AM #31
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default

Oh, I'm so, so sorry. Joining in prayers to our Gracious Father for your family's peace to transcend all understanding. My He bless you all and especially your little one.
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN


"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote

advertisement
Old 06-06-2007, 11:58 AM #32
used to be used to be is offline
Junior Member
 
Join Date: Mar 2007
Posts: 88
15 yr Member
used to be used to be is offline
Junior Member
 
Join Date: Mar 2007
Posts: 88
15 yr Member
Default

'AND GOD WILL WIPE AWAY EVERY TEAR FROM THEIR EYES AND DEATH
WILL BE NO MORE,NEITHER WILL MOURNING NOR OUTCRY OR PAIN BE
ANYMORE. THE FORMER THINGS HAVE PASSED AWAY." REV 21:4


Jeannie
used to be is offline   Reply With QuoteReply With Quote
Old 06-06-2007, 07:08 PM #33
CoolAngel26's Avatar
CoolAngel26 CoolAngel26 is offline
Member
 
Join Date: Aug 2006
Location: In the Angelic realm
Posts: 618
15 yr Member
CoolAngel26 CoolAngel26 is offline
Member
CoolAngel26's Avatar
 
Join Date: Aug 2006
Location: In the Angelic realm
Posts: 618
15 yr Member
Heart {{{Dolphin}}}

for you and your family.. Love,CoolAngel26
__________________
CoolAngel26~When life deals you a lemon,make lemonade and brownies.~Life is like a box of chocolates,you never know what you're gonna get.
.

.

.
CoolAngel26 is offline   Reply With QuoteReply With Quote
Old 06-06-2007, 07:15 PM #34
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default

Hey Dolphin,

I'm so sorry for what you and your family are going through. I'm sorry there is nothing I can do to help in any physical manner but you will all be in my thoughts.

Love and gentle hugs to you all

Frogga xxxxxxxxxxxxx
frogga is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 02:09 AM #35
theoneRogue420's Avatar
theoneRogue420 theoneRogue420 is offline
Member
 
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
15 yr Member
theoneRogue420 theoneRogue420 is offline
Member
theoneRogue420's Avatar
 
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
15 yr Member
Default

Dolphin, my parayers are with you, good luck and God Bless.

I fully understand and agree with your decision not to seek that treatment for her. Let her last days here be peaceful, and spent at home in familiar surroundings with the people she loves. Yet never give up hope, either, as contradictory as that sounds, lol. My Michael was diagnosed with Non-Hodgkins Lymphoma in 1999, and given 3-6 months to live. He was okay with this, as he also has aids & hepC... he thought quick cancer might just be a blessing. He refused treatment, went home to die in his own way, on his own time. Well, it's 2007, and he's still here with me, thank you God! So keep the faith alive, you just never know.
__________________

There are only two types of people in this world... those who bring you peace and those who don't.
theoneRogue420 is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 12:14 PM #36
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
Default Thank you

Thank you for your support and prayers, our families have all made it in safely. Josie stopped eating altogether yesterday, she just will not take anything, we tried sugar water and pedialite just to keep her hydrated, but it's like she made up her own mind. The only good thing is that she is not in any pain, we hold her all the time. We have taken more pictures this week then we've taken all year. Well I just wanted to say thank you. We will keep you posted.
__________________
Life is not measured by the number of breaths we take, but by the moments that take our breath away
.
dolphin is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 01:09 PM #37
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
Default

Quote:
Originally Posted by dolphin View Post
Thank you for your support and prayers, our families have all made it in safely. Josie stopped eating altogether yesterday, she just will not take anything, we tried sugar water and pedialite just to keep her hydrated, but it's like she made up her own mind. The only good thing is that she is not in any pain, we hold her all the time. We have taken more pictures this week then we've taken all year. Well I just wanted to say thank you. We will keep you posted.
(((HUGE HUGS)))
InHisHands is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 03:09 PM #38
Debby's Avatar
Debby Debby is offline
Member
 
Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
Debby Debby is offline
Member
Debby's Avatar
 
Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
Default

Your news has saddened me deeply for you & your family. I was taught at one time that God only loans us His children to raise, and for whatever reason that we cannot fathom, He has only granted your family but a brief moment in time to have baby Josie in your arms. He is calling her back home into His arms, as she as done all that He has required of her here on Earth. I know you are cherishing each & every moment that God has loaned her to you........and know that her work, however brief, is over and that she will be waiting for you when your job here on Earth is also over & God then calls for you to come home to Him also.......

I don't know if what I said is of any help in this time of heartfelt sadness...........Know though, that God willbe holding her lovingly in His arms until such time that you will do so again...........

I don't come by often to this forum anymore so I know you don't know me at all, but please know that you & all your family are in my prayers for God to comfort & hold Josie & you softly & lovingly. To bring you all love, peace & grace in these hours of such great need.

Let no man fault you for your choice to have Josie home with her loving family at this time. This is not a choice that anyone makes lightly or alone, for God has led you to this decision. This is what is right for your family. Since no one can know what choices they would make until they would be in the same circumstances, then no one has the right to find any fault with yours.

Sending prayers & love,
DebbyV
Debby is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 04:31 PM #39
jennyk38 jennyk38 is offline
Junior Member
 
Join Date: May 2007
Location: Illinois
Posts: 97
15 yr Member
jennyk38 jennyk38 is offline
Junior Member
 
Join Date: May 2007
Location: Illinois
Posts: 97
15 yr Member
Default why?

Quote:
Originally Posted by dolphin View Post
My husband and I just returned from st. judes. Our 4 month old had been diagnosed with a stage 4 neuroblastoma 2 weeks ago. This was our last option for any kind of treatment. They say that any treatment would just cause suffering, and we should just prepare for the "outcome". So now we are home, it is taking all I have just to type this post. Needless to say, the phone calls to family we have to make will be even harder. All we can ask is for a peaceful and painfree end to Josie's little life. If this sounds awful to anyone here then I'm sorry, but we did not come to this decision easily. I started this post over 4 hours ago, but had to stop several times, as bad as my pain....I would give anything to spare my daughter. So needless to say, I've cried for hours trying to finish this post. My other 2 will be home from grandma house tomorrow, and that is not something i'm not ready to explain. Pray, pray for peace and comfort, pray for support.
i know i've never spoken to you before but i honestly cannot come up with enough word of sympathy for you right now. i am so very,very sorry that anyone should have to suffer the way you and your family are suffering. i wish i had powers to heal everyone, especially josie. i pray for you, your family and especially little josie to have peace, comfort and support. with deepest, utmost sadness i pray for all of you. jenny
jennyk38 is offline   Reply With QuoteReply With Quote
Old 06-11-2007, 10:52 PM #40
kejbrew kejbrew is offline
Member
 
Join Date: Feb 2007
Posts: 129
15 yr Member
kejbrew kejbrew is offline
Member
 
Join Date: Feb 2007
Posts: 129
15 yr Member
Default Shared Prayer Request at Church

Dolphin,

I just want you to know that I added the baby, you, and your family to our church prayer list. There is no situation that diligent prayer and faith cannot handle.

Bless you all,

EJ
kejbrew is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What do you do with your extra meds? Mari Bipolar Disorder 6 04-13-2007 11:49 AM
Extra Hands for ALS KLePenven New Member Introductions 0 03-28-2007 07:15 AM
Prayers and good thoughts needed for DiMarie Curious Sanctuary for Spiritual Support 10 02-09-2007 10:32 AM
Prayers Needed Julie Sanctuary for Spiritual Support 9 09-27-2006 02:16 PM
Extra Lumbar Vertebrae Jyes Spinal Disorders & Back Pain 2 08-29-2006 09:24 AM


All times are GMT -5. The time now is 02:07 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.