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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-04-2007, 04:42 PM | #1 | ||
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Junior Member
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My husband and I just returned from st. judes. Our 4 month old had been diagnosed with a stage 4 neuroblastoma 2 weeks ago. This was our last option for any kind of treatment. They say that any treatment would just cause suffering, and we should just prepare for the "outcome". So now we are home, it is taking all I have just to type this post. Needless to say, the phone calls to family we have to make will be even harder. All we can ask is for a peaceful and painfree end to Josie's little life. If this sounds awful to anyone here then I'm sorry, but we did not come to this decision easily. I started this post over 4 hours ago, but had to stop several times, as bad as my pain....I would give anything to spare my daughter. So needless to say, I've cried for hours trying to finish this post. My other 2 will be home from grandma house tomorrow, and that is not something i'm not ready to explain. Pray, pray for peace and comfort, pray for support.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away . |
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06-04-2007, 05:05 PM | #2 | |||
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Junior Member
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I cannot even begin to imagine what your family is going through, it is a parents worse nightmare. I wish I could come up with something profound to say or make sense of something that makes no sense at all....all I can offer are my prayers. Much peace to you and your family, enjoy every moment with your precious angel
much love Jeanne |
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06-04-2007, 05:32 PM | #3 | ||
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May you feel the loving presence of those who hold you
in their thoughts and prayers May you see the light in the darkness during these challenging times May your spirit find what it needs to substain you on this journey May you be filled with comfort, strength and love. |
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06-04-2007, 06:02 PM | #4 | ||
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I am so sorry for what your child and your family are going through. Please know that I you are in my thoughts and prayers.
Sue k |
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06-04-2007, 06:10 PM | #5 | |||
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Senior Member
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Got ya covered in prayers.
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. Gone Squatchin |
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06-04-2007, 06:39 PM | #6 | |||
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Junior Member
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I lurk, and never post, but this time i had to. To lose a child is the worse thing a parent can go thru, and a baby this young, I can't even imagine. Prayers are the least we can do for you. And no one can think less of you for the decision you have made to let your baby go in peace at home, instead of a sterile hospital room. In your previous post you have let everyone know how much you love your girls and family. My heart goes out to you and yours.
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06-04-2007, 09:07 PM | #7 | ||
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Dolphin,
I can only offer my thoughts and prayers. Fortunately, there is no power above the power of prayer. May the peace of the Lord, which passeth all understanding bless and keep your hearts in this hour of intense trial. May you have the comfort and strength you need to make it through each day; and at night may you have blessed rest that only comes from above. These blessings I ask in the mighty name of our Lord and Saviour - Jesus Christ, Amen! In humble submission, EJ |
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06-04-2007, 10:12 PM | #8 | |||
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i am sending prayers to you and your family as you go through this horrible ordeal...........your decision is just that....YOUR decision.......no one will fault you for chosing a better life for your daughter....may she have an easy passage to a better life...gentle hugs and many prayers to you and yours..................
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. claudia . |
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06-04-2007, 11:19 PM | #9 | ||
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Oh dolphin,
This is terrible news. My heart goes out to you and words fail me. |
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06-05-2007, 12:39 AM | #10 | |||
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Dolphin, I am so very sorry for what you and your family are going through. I pray for peace, and for God to touch your precious little one right now and gently touch her and speak soothing words in her little ear and tell her how very much you all love and care for her, and she will understand. Dolphin, I cannot even begin to know or understand why your little one has to be in such pain and this must have to be the most hardest thing you have ever yet to do. God, please touch Dolphin's little baby, take the pain and suffering away, touch and comfort her parents and extended family and give them all your peace. I ask this in Jesus name. amen.
God promised Moses," I will put you in the cleft of the rock, and will cover you with my hand" (Exod.) 33;22). God bless and be near all of you Dolphin. many hugs and prayers being lifted up. Love, Desi The Lord has comforted his people and will have compassion on His suffering ons. Isaiah 49:13
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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