Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-18-2014, 05:09 PM #1
LISAR624 LISAR624 is offline
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Originally Posted by HarryDresden View Post
Thanks Catra, this makes sense. If I consider a flare to be any increase in symptoms, then I get them daily around 7 and they leave around 9 and it comes in the form of a slight increase in warmth. I suppose I could just avoid this time of the day...
I have had many flare ups in the 18yrs. I have had this disease. I just learned after reading your post about blood pressure. I have been having low blood pressure since getting this! LISAR624
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Old 11-17-2014, 07:19 PM #2
LISAR624 LISAR624 is offline
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Greetings,

I have posted my history in other threads so won't re-post it here, for this question i'll simply state that to date (6ish months in) I haven't had anything that resembles the burning/freezing pain described by others. One question that has been on my mind and for which I haven't found any information on is if its possible to have CRPS without "flare ups"? Or maybe it would help to understand when others first had them occur in relation to getting CRPS.

Thanks for any advice
My RSD occurred 18yrs in my right arm due to a car accident. Within 5 yrs later it spread to my left arm but was caught early. I had back surgery 10yrs ago it spread to both legs. I had a pain mgment Dr that caught it and did a 5 day epidural drip/physical therapy. my right leg went into remission but I have always had issues with the left. YES it can spread! Just be alert and pray you have a DR that will listen and be on top of it. I am 90% in bed and in pain but I keep going.LISAR624
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