Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 10-29-2014, 03:24 PM #1
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
Default

Quote:
Originally Posted by zookester View Post
There are many pain related symptoms associated with CRPS types I and II. Burning/Freezing pain is just one of them others are lancinating, electrical shock type, bone crushing, like a knife is being twisted in your limb, being stung or stabbed by sharp needles etc., relentlessly!! That being said pain can wax and wane although in CRPS it never goes away (with the exception of remission) and when a flare hits (not unlike the flame of a fire that suddenly burst/increases) the pain suddenly increases. A flare can last for minutes, hours, days and even become the new baseline for the daily torture that CRPS can cause.

Having a "flare" is not diagnostic of CRPS because many other things can cause someone to have a pain flare. Osteoporosis for instance, can cause pain and eventually pain flares.. as does many other things.
Thanks Zoo,

it's very interesting that osteoporosis can cause flares. My X-rays, just a month back) showed osteopania and it might still persist, though given my diet and weight lifting i doubt it played a role in the injury, it might be playing a role in my current symptoms. I'm still at about 40% ROM in my toes so at least i have something to work on that might help.
HarryDresden is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Phaedra (10-29-2014), zookester (10-30-2014)
Old 10-29-2014, 06:21 PM #2
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Quote:
Originally Posted by HarryDresden View Post
Thanks Zoo,

it's very interesting that osteoporosis can cause flares. My X-rays, just a month back) showed osteopania and it might still persist, though given my diet and weight lifting i doubt it played a role in the injury, it might be playing a role in my current symptoms. I'm still at about 40% ROM in my toes so at least i have something to work on that might help.
I think perhaps you misunderstood my mention of osteoporosis and pain flares. It was just an example. Anything that causes pain like arthritis, chrohns disease, CRPS, IBS etc., that have a base line of what would be considered tolerable or normal pain levels that suddenly increase with or without a trigger is considered a pain flare or even a symptom flare. The reason I used osteoporosis as an example in your case was simply because previously you mentioned being positive for osteopenia which can contribute to pain, more prone to bone fractures and if it continues or progresses into osteoporosis then yes pain is likely. In your shoes I wouldn't say it didn't play a role in your fracture(s) since having osteopenia at your age especially considering you do lift weights and eat healthy this particular diagnosis (osteopenia) should be further investigated. As I mentioned in a previous post to you it is highly unlikely that the osteopenia was caused by CRPS given your symptoms and reduced pain levels since injury. In your shoes I would seek out an internal medicine doctor who can do a complete workup of your blood, endocrine etc., that would explain osteopenia at your age & fitness level.

As far as ROM goes it is not uncommon to have reduced ROM for even up to 2 years after a fracture. I would think that for the toes this could be longer since the normal ROM is quite small and they really aren't doing big movements throughout the day. My most recent fracture of my ankle was just this past July and I've only gotten about 50% ROM back at this point also and pain is still there with certain movements but nothing like the pain I feel in my legs from CRPS. It is pain from stiffness/swelling and stretched tendons/ligaments. I know this to be true because the pain improves with resting and elevation and worsens with use. CRPS pain does not improve with rest, elevation or anything else for that matter.. it is there the minute you open your eyes until the minute I manage to fall asleep - at least this is the way it is for me.

As long as your pain is improving or stays in the low levels and the bone is healing I would continue to remain positive and be patient with your healing.

** I see in another post that you mentioned you do get increased pain at the same time everyday? Is this in the morning or night and what are you doing before this increase in pain?
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Phaedra (10-29-2014)
Old 10-29-2014, 10:50 PM #3
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
Default

Quote:
Originally Posted by zookester View Post
I think perhaps you misunderstood my mention of osteoporosis and pain flares. It was just an example. Anything that causes pain like arthritis, chrohns disease, CRPS, IBS etc., that have a base line of what would be considered tolerable or normal pain levels that suddenly increase with or without a trigger is considered a pain flare or even a symptom flare. The reason I used osteoporosis as an example in your case was simply because previously you mentioned being positive for osteopenia which can contribute to pain, more prone to bone fractures and if it continues or progresses into osteoporosis then yes pain is likely. In your shoes I wouldn't say it didn't play a role in your fracture(s) since having osteopenia at your age especially considering you do lift weights and eat healthy this particular diagnosis (osteopenia) should be further investigated. As I mentioned in a previous post to you it is highly unlikely that the osteopenia was caused by CRPS given your symptoms and reduced pain levels since injury. In your shoes I would seek out an internal medicine doctor who can do a complete workup of your blood, endocrine etc., that would explain osteopenia at your age & fitness level.

As far as ROM goes it is not uncommon to have reduced ROM for even up to 2 years after a fracture. I would think that for the toes this could be longer since the normal ROM is quite small and they really aren't doing big movements throughout the day. My most recent fracture of my ankle was just this past July and I've only gotten about 50% ROM back at this point also and pain is still there with certain movements but nothing like the pain I feel in my legs from CRPS. It is pain from stiffness/swelling and stretched tendons/ligaments. I know this to be true because the pain improves with resting and elevation and worsens with use. CRPS pain does not improve with rest, elevation or anything else for that matter.. it is there the minute you open your eyes until the minute I manage to fall asleep - at least this is the way it is for me.

As long as your pain is improving or stays in the low levels and the bone is healing I would continue to remain positive and be patient with your healing.

** I see in another post that you mentioned you do get increased pain at the same time everyday? Is this in the morning or night and what are you doing before this increase in pain?

Thanks a lot zookester,

The osteopenia showed up around month 3 in the toes,your 100% right i should explore this with my doctors so i understand what might have caused it. I see some literature relating stage 1 CRPS with patchy bone loss, but its unclear what the cause effect is.

I hope it doesn't take 2 years to restore ROM, but i wouldn't be surprised.

Quote:
I see in another post that you mentioned you do get increased pain at the same time everyday? Is this in the morning or night and what are you doing before this increase in pain?
My Symptoms: warmth, redness, odd twinges, small electric shocks. The foot often feels sore to walk on, but I feel this could easily be part of the recovery process. These are the symptoms and pain level that I have had for the last month or so.

My symptoms seem to increase as the day goes on. Starting with no symptoms (0 pain) in the morning and increasing tell around 7-9pm (2 pain). Around 7-9 their seems to be a slight boost in symptoms. Which then fades around 10-11 (1 pain).

Symptoms increasing/decreasing don't seem to be correlate with how much i exercised that day. Squatting plus a mile of walking resulted in less pain then days when I only do mild walking.

Driving (pressing the petal) seems to be the most uncomfortable activity.
HarryDresden is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
zookester (10-30-2014)
Old 10-29-2014, 11:29 PM #4
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Quote:
Originally Posted by HarryDresden View Post
Thanks a lot zookester,

The osteopenia showed up around month 3 in the toes,your 100% right i should explore this with my doctors so i understand what might have caused it. I see some literature relating stage 1 CRPS with patchy bone loss, but its unclear what the cause effect is.

I hope it doesn't take 2 years to restore ROM, but i wouldn't be surprised.



My Symptoms: warmth, redness, odd twinges, small electric shocks. The foot often feels sore to walk on, but I feel this could easily be part of the recovery process. These are the symptoms and pain level that I have had for the last month or so.

My symptoms seem to increase as the day goes on. Starting with no symptoms (0 pain) in the morning and increasing tell around 7-9pm (2 pain). Around 7-9 their seems to be a slight boost in symptoms. Which then fades around 10-11 (1 pain).

Symptoms increasing/decreasing don't seem to be correlate with how much i exercised that day. Squatting plus a mile of walking resulted in less pain then days when I only do mild walking.

Driving (pressing the petal) seems to be the most uncomfortable activity.
Regarding the osteopenia showing up at month 3 - unless you had a base line prior to month 3 there would be know reason to believe that this was caused from CRPS. Osteopenia in CRPS is usually a much later stage of disease process or in those with a severe case in which by your history this is not the case for you - so I do hope you get it checked out.

Your symptoms above sound more like the healing process - it would not be uncommon for pain to increase in the morning after sleeping as this is when inflammation and stiffness occur due to disuse while sleeping it is also a common symptom as an inflammatory response to the normal healing process, as is the increase in warmth and even twinges of nerve pain.

It also makes total sense the the most uncomfortable thing for you is the driving as this would be when you would utilize the small bones (toes) the most. Have you ever used a 'balance board' for therapy? It is often utilized for ankle sprain/brakes but,I would bet it would be good for you for your toes as well.

Lastly, regarding ROM in your toes - there are many worse body parts to have reduced ROM .. keep up with your fitness routine and don't forget to massage your foot (especially the toes) to facilitate healing and brake up any scar tissue that is forming. Massage + epsom salt soaks + physical therapy = speedy healing and if it truly turns out to be CRPS then all these things will have helped you already.

Last edited by zookester; 10-30-2014 at 07:49 AM.
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (10-30-2014)
Old 10-30-2014, 03:45 PM #5
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
Default

Quote:
Originally Posted by zookester View Post
Regarding the osteopenia showing up at month 3 - unless you had a base line prior to month 3 there would be know reason to believe that this was caused from CRPS. Osteopenia in CRPS is usually a much later stage of disease process or in those with a severe case in which by your history this is not the case for you - so I do hope you get it checked out.
Will do!

Quote:
Your symptoms above sound more like the healing process - it would not be uncommon for pain to increase in the morning after sleeping as this is when inflammation and stiffness occur due to disuse while sleeping it is also a common symptom as an inflammatory response to the normal healing process, as is the increase in warmth and even twinges of nerve pain.
My pain is at its lowest after I wake up (usually no symptoms), it usually increases slightly throughout the day.

Quote:
It also makes total sense the the most uncomfortable thing for you is the driving as this would be when you would utilize the small bones (toes) the most. Have you ever used a 'balance board' for therapy? It is often utilized for ankle sprain/brakes but,I would bet it would be good for you for your toes as well.
Yes actual! I used one in therapy the very day you posted this.

Quote:
Lastly, regarding ROM in your toes - there are many worse body parts to have reduced ROM .. keep up with your fitness routine and don't forget to massage your foot (especially the toes) to facilitate healing and brake up any scar tissue that is forming. Massage + epsom salt soaks + physical therapy = speedy healing and if it truly turns out to be CRPS then all these things will have helped you already.
Ok, the only thing I haven't tried is the epsom salt soaks. I'll have to look into it, I thought they were for de-sensitizing the area to reduce pain. Do they offer some healing benefit?
HarryDresden is offline   Reply With QuoteReply With Quote
Old 10-30-2014, 04:47 PM #6
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Epsom salt soaks and/or Morton Epsom lotion will help with the
circulation in your foot.

Did anyone explain what happens during a bone crushing injury?

You get damage to the skin, ligaments, the lining around the toe bone (the periosteum) and the bone itself.
http://www.britannica.com/EBchecked/...978/periosteum

You can have lingering inflammation to the ligaments, which have nerves in them, or crushing to the nerves themselves, and the periosteum has to regenerate to do its job with bone remodeling. It is damaged, then it will take time to regenerate.

The magnesium in either the epsom salts or the Morton's I recommended to you before, will help the blood flow to your foot. This will help speed healing and lessen the inflammation caused by Cox-2 cytokines, which tend to cause the blood vessels to constrict where there is injury.

If you get the lotion, which is far more concentrated and convenient than epsom salt soaks, apply it to the ankle, and top of the foot. That is where most of the poor circulation is. It will drift down to your toe. Sometimes the BEST intervention is a simple one.

Make sure your socks do not leave constrictive marks on your lower leg, and that your shoes are not too tight, or tied too tightly. This will compress both nerves, and small blood vessels and impair the circulation to your foot. The redness and warmth may be the blood returning after a long day with some issue preventing good blood flow.

Magnesium does 3 main things.
1) increases blood circulation where it is applied
2) blocks the NMDA pain receptors
3) relaxes muscle and works opposite to calcium which contracts
muscles. So magnesium tends to prevent twitching and cramping.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (10-30-2014), HarryDresden (11-12-2014)
Old 10-30-2014, 04:55 PM #7
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Yes, Epsom salt soaking helps with the inflammatory response which in turn will reduce scar tissue formation (scarring of soft tissue increases pain and stiffness), this will also reduce pressure upon nerves due to swelling/inflammation and increase circulation which is needed in order to heal. Your body needs proper circulation of blood flow in order to heal. You can give your body a little help by using epsom salt soaks, massage, physical therapy, rest, moist heat and even by using compression socks and or KT tape - all good measures regardless of whether or not you have CRPS.
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
HarryDresden (11-12-2014)
Old 11-14-2014, 04:58 PM #8
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
10 yr Member
Default

Quote:
Originally Posted by zookester View Post
I think perhaps you misunderstood my mention of osteoporosis and pain flares. It was just an example. Anything that causes pain like arthritis, chrohns disease, CRPS, IBS etc., that have a base line of what would be considered tolerable or normal pain levels that suddenly increase with or without a trigger is considered a pain flare or even a symptom flare. The reason I used osteoporosis as an example in your case was simply because previously you mentioned being positive for osteopenia which can contribute to pain, more prone to bone fractures and if it continues or progresses into osteoporosis then yes pain is likely. In your shoes I wouldn't say it didn't play a role in your fracture(s) since having osteopenia at your age especially considering you do lift weights and eat healthy this particular diagnosis (osteopenia) should be further investigated. As I mentioned in a previous post to you it is highly unlikely that the osteopenia was caused by CRPS given your symptoms and reduced pain levels since injury. In your shoes I would seek out an internal medicine doctor who can do a complete workup of your blood, endocrine etc., that would explain osteopenia at your age & fitness level.

As far as ROM goes it is not uncommon to have reduced ROM for even up to 2 years after a fracture. I would think that for the toes this could be longer since the normal ROM is quite small and they really aren't doing big movements throughout the day. My most recent fracture of my ankle was just this past July and I've only gotten about 50% ROM back at this point also and pain is still there with certain movements but nothing like the pain I feel in my legs from CRPS. It is pain from stiffness/swelling and stretched tendons/ligaments. I know this to be true because the pain improves with resting and elevation and worsens with use. CRPS pain does not improve with rest, elevation or anything else for that matter.. it is there the minute you open your eyes until the minute I manage to fall asleep - at least this is the way it is for me.

As long as your pain is improving or stays in the low levels and the bone is healing I would continue to remain positive and be patient with your healing.

** I see in another post that you mentioned you do get increased pain at the same time everyday? Is this in the morning or night and what are you doing before this increase in pain?
Another follow up and thank you.

I saw my new internal doctor and tests came back that i was mildly low in vitamin D. Given that I started drinking 2-3 cups of milk about only month ago, it stands to reason i might have been more then mildly low 6 months ago.

I'll have to revisit my diet/lifestyle choices and see if there is something i'm missing.
HarryDresden is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I am again having a bad PN flare. Aussie99 Medications & Treatments 4 06-10-2012 07:57 AM
Bad flare catra121 Reflex Sympathetic Dystrophy (RSD and CRPS) 7 11-19-2010 12:46 PM
pseudo flare while still in a flare? legzzalot Multiple Sclerosis 9 09-29-2009 05:58 AM
Question about flare ups and development of rash moey1997 Reflex Sympathetic Dystrophy (RSD and CRPS) 2 08-02-2008 07:58 PM
First Flare Catch Multiple Sclerosis 5 02-06-2008 02:22 PM


All times are GMT -5. The time now is 10:25 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.