Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-30-2014, 04:47 PM #11
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Epsom salt soaks and/or Morton Epsom lotion will help with the
circulation in your foot.

Did anyone explain what happens during a bone crushing injury?

You get damage to the skin, ligaments, the lining around the toe bone (the periosteum) and the bone itself.
http://www.britannica.com/EBchecked/...978/periosteum

You can have lingering inflammation to the ligaments, which have nerves in them, or crushing to the nerves themselves, and the periosteum has to regenerate to do its job with bone remodeling. It is damaged, then it will take time to regenerate.

The magnesium in either the epsom salts or the Morton's I recommended to you before, will help the blood flow to your foot. This will help speed healing and lessen the inflammation caused by Cox-2 cytokines, which tend to cause the blood vessels to constrict where there is injury.

If you get the lotion, which is far more concentrated and convenient than epsom salt soaks, apply it to the ankle, and top of the foot. That is where most of the poor circulation is. It will drift down to your toe. Sometimes the BEST intervention is a simple one.

Make sure your socks do not leave constrictive marks on your lower leg, and that your shoes are not too tight, or tied too tightly. This will compress both nerves, and small blood vessels and impair the circulation to your foot. The redness and warmth may be the blood returning after a long day with some issue preventing good blood flow.

Magnesium does 3 main things.
1) increases blood circulation where it is applied
2) blocks the NMDA pain receptors
3) relaxes muscle and works opposite to calcium which contracts
muscles. So magnesium tends to prevent twitching and cramping.
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Old 10-30-2014, 04:55 PM #12
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Yes, Epsom salt soaking helps with the inflammatory response which in turn will reduce scar tissue formation (scarring of soft tissue increases pain and stiffness), this will also reduce pressure upon nerves due to swelling/inflammation and increase circulation which is needed in order to heal. Your body needs proper circulation of blood flow in order to heal. You can give your body a little help by using epsom salt soaks, massage, physical therapy, rest, moist heat and even by using compression socks and or KT tape - all good measures regardless of whether or not you have CRPS.
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Old 11-12-2014, 10:42 PM #13
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Yes, Epsom salt soaking helps with the inflammatory response which in turn will reduce scar tissue formation (scarring of soft tissue increases pain and stiffness), this will also reduce pressure upon nerves due to swelling/inflammation and increase circulation which is needed in order to heal. Your body needs proper circulation of blood flow in order to heal. You can give your body a little help by using epsom salt soaks, massage, physical therapy, rest, moist heat and even by using compression socks and or KT tape - all good measures regardless of whether or not you have CRPS.

Based on you and mrsD's advice i got a foot bath and some epsom salts and have done a 20-30 minute soak everyday. It's hard to say anything conclusively but it seems to have decreased by symptoms by about 10-30%. Which, as i'm increasingly thankful for, were (are) mild.

So a big thanks to both of you.

In regards to my original topic, the only two things that seem to cause an increase are time of day (its worse in evening) and some foods (maybe i should try the CRPS diet).
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Old 11-14-2014, 04:58 PM #14
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I think perhaps you misunderstood my mention of osteoporosis and pain flares. It was just an example. Anything that causes pain like arthritis, chrohns disease, CRPS, IBS etc., that have a base line of what would be considered tolerable or normal pain levels that suddenly increase with or without a trigger is considered a pain flare or even a symptom flare. The reason I used osteoporosis as an example in your case was simply because previously you mentioned being positive for osteopenia which can contribute to pain, more prone to bone fractures and if it continues or progresses into osteoporosis then yes pain is likely. In your shoes I wouldn't say it didn't play a role in your fracture(s) since having osteopenia at your age especially considering you do lift weights and eat healthy this particular diagnosis (osteopenia) should be further investigated. As I mentioned in a previous post to you it is highly unlikely that the osteopenia was caused by CRPS given your symptoms and reduced pain levels since injury. In your shoes I would seek out an internal medicine doctor who can do a complete workup of your blood, endocrine etc., that would explain osteopenia at your age & fitness level.

As far as ROM goes it is not uncommon to have reduced ROM for even up to 2 years after a fracture. I would think that for the toes this could be longer since the normal ROM is quite small and they really aren't doing big movements throughout the day. My most recent fracture of my ankle was just this past July and I've only gotten about 50% ROM back at this point also and pain is still there with certain movements but nothing like the pain I feel in my legs from CRPS. It is pain from stiffness/swelling and stretched tendons/ligaments. I know this to be true because the pain improves with resting and elevation and worsens with use. CRPS pain does not improve with rest, elevation or anything else for that matter.. it is there the minute you open your eyes until the minute I manage to fall asleep - at least this is the way it is for me.

As long as your pain is improving or stays in the low levels and the bone is healing I would continue to remain positive and be patient with your healing.

** I see in another post that you mentioned you do get increased pain at the same time everyday? Is this in the morning or night and what are you doing before this increase in pain?
Another follow up and thank you.

I saw my new internal doctor and tests came back that i was mildly low in vitamin D. Given that I started drinking 2-3 cups of milk about only month ago, it stands to reason i might have been more then mildly low 6 months ago.

I'll have to revisit my diet/lifestyle choices and see if there is something i'm missing.
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Old 11-17-2014, 07:19 PM #15
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Greetings,

I have posted my history in other threads so won't re-post it here, for this question i'll simply state that to date (6ish months in) I haven't had anything that resembles the burning/freezing pain described by others. One question that has been on my mind and for which I haven't found any information on is if its possible to have CRPS without "flare ups"? Or maybe it would help to understand when others first had them occur in relation to getting CRPS.

Thanks for any advice
My RSD occurred 18yrs in my right arm due to a car accident. Within 5 yrs later it spread to my left arm but was caught early. I had back surgery 10yrs ago it spread to both legs. I had a pain mgment Dr that caught it and did a 5 day epidural drip/physical therapy. my right leg went into remission but I have always had issues with the left. YES it can spread! Just be alert and pray you have a DR that will listen and be on top of it. I am 90% in bed and in pain but I keep going.LISAR624
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Old 11-18-2014, 05:09 PM #16
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Thanks Catra, this makes sense. If I consider a flare to be any increase in symptoms, then I get them daily around 7 and they leave around 9 and it comes in the form of a slight increase in warmth. I suppose I could just avoid this time of the day...
I have had many flare ups in the 18yrs. I have had this disease. I just learned after reading your post about blood pressure. I have been having low blood pressure since getting this! LISAR624
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