Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-17-2014, 07:11 PM #11
LISAR624 LISAR624 is offline
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Join Date: Aug 2014
Posts: 56
8 yr Member
LISAR624 LISAR624 is offline
Junior Member
 
Join Date: Aug 2014
Posts: 56
8 yr Member
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Quote:
Originally Posted by NurseKris View Post
I was wondering if anyone else has felt like they are grieving because of CRPS/RSD. I feel as if I have been grieving the loss of my life before this condition. Maybe it is because I am/was a hospice nurse and I am very familiar with the stages of grief.

Honestly some things are shallow for example, the closet full of shoes I am unable to wear. I never realized how much I would miss walking my dogs and talking with my neighbors along the way. Or being able to have a long, hot shower. Or all the clothes I am unable to wear. Being able to drive to the grocery store by myself and do my shopping. When I am out in public I feel like I spend more time trying to protect my legs from being touched than enjoying myself. For many years I have used nurse, as a way to describe who I am and honestly that has been the hardest to give up.

I do have a wonderful support system, but as much as the say they understand there is no way they really understand what it is like everyday. That is why it helps so much to have this site. Knowing that I am not alone in fighting this battle that there are others that truly understand is encouraging. Reading the stories of those of you who have faced this for years and are still fighting gives me hope. Thank you for allowing me to express myself and thank you for giving me something to look forward to.
You are lucky for having a great support system. My mom who was mine died July 2013. I have lost friends & my job. I have been living with this disease for 18yrs. When doctors said it was in your head and there wasn't many support groups or people admitting to it. LISAR624
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