Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-07-2007, 06:07 AM #1
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Hey Cjay!

Aaaaiiiiyahhh!! (as they say here) nope, don't think I'll bother with that any more, you've put me off it for life, very effectively. Burnt insides, ye gods
Thanks so much for letting us know, isn't sharing info a truly wonderful thing?!

all the best
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Old 06-07-2007, 09:46 AM #2
dealingwithtos dealingwithtos is offline
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HI Everyone.

Thank you for your comments.

When these things are new, I absolutely agree that it's almost being a guinnea pig.

What I know about this unit is:

1. There are 8 electrodes that are put on your body. I also asked the question if it was going to be put on the area where my RSD is. The gentleman said no, it could be put in other areas.

2. The shock is such of a 9 volt battery - I'm told.

3. The man that was mentioned from Texas also had RSD. So, he developed this treatment for himself, initially.

4. If a patient has many medical issues, this may be too much of a risk. I, personally, don't have any other issues, or metal in my body. Thank you for mentioning your experience. That's how we can learn more and possibly prevent additional pain in others.

5. I know that it's not widely used. I was told that clinics, doctors, etc make more money on the nerve blocks, surgeries, etc. (Not sure if that's accurate)

6. The ideal treatment is 1 hour twice a day.

I'll let you know what I find out - I haven't made an appt yet. It does sound encouraging if nothing else has helped.

Positive thoughts for a pain free day!
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Old 06-07-2007, 10:17 AM #3
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my experience.

1. I had STS treatment.

2. It caused a MAJOR spread. Within 45 minutes pain level went from a 3 to a 10!!! (the person running this machine on me said they had never seen this happen but my body turned bright red and was swelling. they said that usually it gives some relief or none)

A. Machine was running correctly
B. Power levels were well within the perimeters
C. Pads have to be placed in a certain pre-established, pre-determined pattern as set forth by the manufacturer for the particular disease/ailment of the patient.
D. They run it on your legs for a set amount of time, then move the pads to your arms for a set amount of time.

3. My pain and spread have NEVER went back down and has since spread BODY WIDE!

4. This is a costly treatment... I was told it cost $1100.00 per treatment and they had me scheduled for 2 treatments per day for a month and then I would have to purchase my own machine for home treatments.

5. I had no other medical problems!!!

6. I must also say that this DID NOT HURT WHILE the machine was running on that particular part of my body. The flair started once the pads were removed...No, the pads themselves did not hurt as the RSD was not in the area where the pads had been placed.

I'm not telling anyone not to try this... just know the risks!!!

abbie

Last edited by Abbie; 06-07-2007 at 12:42 PM. Reason: Because, I remembered something else.
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Old 06-07-2007, 11:13 AM #4
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I wonder if it is like the Interferential stimulation machines?
the power signals interfere with each other so less chance of tingle/zap, stinging. These work deeper into the muscles/tissue too.

When my chiro got his INF stim he asked if they could use me as a guinea pig LOL - the tech/trainer for the stim company was there to train him.
The tech had him start at a fairly high setting instead of starting low and working up to my tolerance level. But they listened to me and turned it down fast.
A few times later I let him turn it so it was really flexing my muscles- it didn't hurt but I ended up with triggerpoints afterward-so lesson learned.
One time it flexed my shoulder muscles so much I thought it was gonna pop out of the socket.
So now we just keep it to low levels so it feels like a wonderful full back massage.
But in my case it's for the TOS and myofascial pain- so I don't know how it would apply to cases of RSD.

any time they turn any of those electric stimulator's up too high you will feel zapping , shock or stinging.

If you do it and you feel it is too high of a setting- demand they turn it down- just because those settings are the norm doesn't mean everyone can tolerate it.

I have a cheap muscle stim {EMS} for home use and it pretty much only works on the surface of the muscles compared to the INF stim my chiro uses.
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Old 06-08-2007, 07:57 AM #5
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Quote:
Originally Posted by jo55 View Post
I wonder if it is like the Interferential stimulation machines?
the power signals interfere with each other so less chance of tingle/zap, stinging. These work deeper into the muscles/tissue too.

When my chiro got his INF stim he asked if they could use me as a guinea pig LOL - the tech/trainer for the stim company was there to train him.
The tech had him start at a fairly high setting instead of starting low and working up to my tolerance level. But they listened to me and turned it down fast.
A few times later I let him turn it so it was really flexing my muscles- it didn't hurt but I ended up with triggerpoints afterward-so lesson learned.
One time it flexed my shoulder muscles so much I thought it was gonna pop out of the socket.
So now we just keep it to low levels so it feels like a wonderful full back massage.
But in my case it's for the TOS and myofascial pain- so I don't know how it would apply to cases of RSD.

any time they turn any of those electric stimulator's up too high you will feel zapping , shock or stinging.

If you do it and you feel it is too high of a setting- demand they turn it down- just because those settings are the norm doesn't mean everyone can tolerate it.

I have a cheap muscle stim {EMS} for home use and it pretty much only works on the surface of the muscles compared to the INF stim my chiro uses.
hello, what exactly are trigger points and how did this cause them? thanks, jenny ( i am curious because i'm thinking about seeing chiropractor but not sure if i should? kind of scared) thanks, jenny
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Old 06-08-2007, 12:26 PM #6
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Hi jenny,
the first thing I will say is really check them out {as with any service person these days} to be sure they are well trained or have real knowledge and experience - don't go to any beginners.
Many times you can go for an evaluation {free or discounted} before committing to the one of your choice. ask about it.
Gentleness is a good thing- mine spec in geriatric care so he is.

I have some links on TRPs that can explain better than I can-
Triggerpoints and referred pain and stretching:
http://www.triggerpointbook.com/index.html
http://triggerpoints.net/_sgg/m1m1_1.htm
http://www.pressurepointer.com/pain_reference_chart.htm
http://altmedicine.about.com/library...ressure+points
http://www.drlowe.com./triggerpoint.htm

a very basic explanation of a Triggerpoint- a muscle can get so tight from overwork or static tension that a small knot {TrP} of tension will develop in it.

after I read more about chiropractic I wasn't as nervous about it-
and I feel I can trust the DC I chose-
Chiropractic care info- a good one can help with many symptoms:
http://www.upcspine.com/self.htm
http://www.uppercervical.org/subpag...b/about_faq.php
http://www.spineuniverse.com/index.html
http://www.coloradochiropractic.org/.../glossary.html
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