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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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12-02-2014, 01:51 PM
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in addition to my email to you cdwall, they are supposed to call me back the gal said she's been there 14yrs & with all the probs I have she didnt feel the doc would want to take me on as a paient due to all the "chanllenges" how difficult of a case I am & of course she's talk to doctor, since she couldnt speak for him & get back to us, which hasnt happened of course. I dont want to go to a pill mill cuz who knows if they will be there the following month, or if it gets raided & we're there (me mom & gma) what happends you know what I mean, so makes things a little harder finding a legit doc/clinic who knows about or willing to learn about RSD & take me on as a paient.
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~HEIDI~ GENERALIZED RSD/CRPS stage II/III (entire body . ) since 2004 HIP DYSPLASIA(right side), hip turned & tilted into back & aprox 2in higher than left side; <wear a shoe lift> ARTHRITIS in both hips & Pelvis; Both Ball Joints are Deteriorating; SIATICA (both sides now) & EPILEPSY . |
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12-20-2014, 05:27 PM
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Heidi, I hope you have found a doctor by now and have got appropriate medication going again. I'm aghast that you could be told in the phone "no I don't think so" I like you thought doctors truly did want to help people but it seems not. Hang in there babe, you have gone through so very much, know that you are well thought of on these boards and we all hold you in our thoughts. Big hug
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I can still remember what life was like before pain became my life long companion |
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| "Thanks for this!" says: | HeidiB (12-21-2014) |
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12-21-2014, 01:32 AM
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First Let me say thank you to those of you who have reached out & responded to my post I cant begin to tell you how much it means. Also to Ms PamelaJune your kind words really came when I needed them the most today, you have NO IDEA! so THANK YOU from the very bottom of my heart & soul thank you!
 As for a doctor it's been a HUGE NIGHTMARE trying to find one who will take me, I have called at least 20 offices, hung up on by at least 4 offices  & the few that were "willing" to take me on were a minimum of $500 for the office visit  which we cant afford, but somehow by the grace of god my mom called an office (45-60mins away) who will take me & under $200 for office visit cant get in til Jan 7th but it's something. I am praying it is not a pill mill & a decent doctor. One of the downfalls is they dont know about RSD which lets face it not alot do but I dont think they've even heard of it so I am going to bring some information for them to have & learn from. I also am really hopping this doc isnt like most with the whole "God complex" Im the doctor your nothing attitude which I am sure you all know exactly what I mean by that lol cuz if that's the case by the time he see's me I am going to be in pain overload & will have to put him in his place which wont be the 1st time Ive had to do that I dont enjoy having to be a Bi*** but after 10yrs of RSD & too many doctors treating me like Im nothing I've gotten to the point of not putting up with being talked down to ya know. ok I've rambled on enough for now been a super bad painful week & with no meds I am ready to scream from pain so might just have to suck it up & go to ER before I either go nuts, snap or put head thru a wall I just do not like hospitals so doing what I can to avoid that..I will update soon, love to all of you and thank you all so much again for just being here for me
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~HEIDI~ GENERALIZED RSD/CRPS stage II/III (entire body . ) since 2004 HIP DYSPLASIA(right side), hip turned & tilted into back & aprox 2in higher than left side; <wear a shoe lift> ARTHRITIS in both hips & Pelvis; Both Ball Joints are Deteriorating; SIATICA (both sides now) & EPILEPSY . |
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| "Thanks for this!" says: | birchlake (12-22-2014), PamelaJune (12-21-2014) |
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12-27-2014, 08:33 AM
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Hi Heidi, I am so sorry you are going through this terrible time. BTW - I love your new picture! You are fabulous!
I am so surprised that in a major city like Tampa there aren't any decent pain management doctors. It is totally ridiculous to be told you have too many issues. MANY people are sick with more than one diagnosis. Is it a matter of health insurance coverage? Who manages your epilepsy treatment? Can that doctor give you a referral? Wishing you peace, Lottie
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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| "Thanks for this!" says: | HeidiB (12-30-2014), PamelaJune (12-29-2014) |
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