sorry you're having such a tough time Heidi. hope you can find a dr to help you with your pain. maybe rsd hope and rsdsa online might have some drs listed in your area to help you. i am not in that area so i don't know of anyone. will be keeping you in my thoughts. hope your new year is better. soft hugs.

Heidi Iam so very sorry for what your going through and understand your problem with finding a doctor who is willing to take care of all the issues and understand at the same time and with passion.
I have the same issue with the full body RSD ever since it went full body every year I have been diagnosed with another disease or finding out one is getting worse from the rsd, to thyroid cancer which led to hypothyroidism, then sarcoidosis, gastroperisis, a connective tissue disorder, then avascular nacrosis which is bones dieing last year was just the ankle now its in my whole right leg and then my ankle collapsed. So finding a doctor that will listen and know how to handle it all is hard the best doctor I found was a rheumatologist, my pain doctor understands but need separate doctors for really it all. I tried seeing a internal medicine doctor but he took issue with my high doses of pain meds and me being in hospital so much, he came to my bed one day in the hospital and was like I don't want to deal with this anymore and if I have a problem with it then that was tough. it was probably for the best as he wasn't working well with my pain doctor who is one of the most important of all the specialists I have. Then I went through so many orthopedists to help me with my bones but all said because of the rsd even if my bones collapsed or broke they wouldn't help. Luckily a few weeks ago I found one that isn't afraid to help me. I really understand how frustrating and depressing it is, many times I just want to throw up my hands and my emotions too are up and down. I just cant understand why my body is falling apart on me. I do the best I can to do what I can each day which isn't much. painting is what keeps me busy the most. the other day my brothers girlfriend had the nerve to say that me staying home and not getting out was so un-healthy and me being with my mom who helps me stay alive is un-healthy that I should get away from her at least an hour or more a day. I told her because of my sarcoid I could stand for more the 30min without running out of breath and the rsd and avn makes me to weak and she was like I just need exercise. I wanted to just slap her.

Again I want to say Iam so sorry for all what your going through and hope you find a doctor that can help you.

Samantha

Heidi ,I really hope you can find the right dr and treatment,isn't always easy for sure but keep the fight and know we are here as well for you. Love and gentle hugs ,Jesika .