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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#21 | |||
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Wow, it is really interesting to see this again!
Wallc1 - I was afraid of blocks but took gabapentin and 2 rounds of steroids initially. Then nortriptyline, lots of rehab work, a pain therapist and many local injections to reduce scarring in my surgical field. Ketamine has helped a lot too. Wow, that actually is quite bit of treatment.... Red - I'm kind of shocked looking back at why it was hard to get diagnosed. My foot turned bright red when down and stung like Hell. I think elevation helps a lot of people and have read that CRPS is worse in dependent position. I was actually asking doctors straight out if they thought I had it... Visioniv - thanks so much for the warm fuzzies! I enjoy being a part of the forum and I HAVE made a lot of progress. Sooo grateful to everyone here for the camaraderie and support. ![]() Looking back I think I really tried to minimize how much pain I was having. Sometimes I think I didn't realize till it lessened. I could barely put my foot down, make dinner or stand the car. I was terribly depressed when I joined and had just started therapy with EMDR and hypnosis. That woman was a life saver for me. I had just finished my second round of radiation to my foot which was really the only option with that growth. My docs were afraid it would infiltrate tendon and bone. Thankfully, it shrunk way down or I wouldn't be walking. Between the fear and the pain no wonder I was depressed! I really am soooo much better. Still discoloring and still with some pain but doing everything that needs to be done day to day, traveling a bit, staying in shape and most importantly having some fun and loving life again! ![]()
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Littlepaw Shine Your Bright Light |
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"Thanks for this!" says: | BioBased (02-19-2016), birchlake (02-19-2016), mama mac (02-19-2016), PurpleFoot721 (02-19-2016), redraidermommy (02-21-2016), visioniosiv (02-19-2016) |
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