Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-25-2015, 10:57 PM #1
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Originally Posted by HarryDresden View Post
Your symptoms mirror mine BEFORE i got my first local nerve block. That is, before the block, i could control the pain through elevation and walking caused discomfort. Have you had one done, they seem to be a common treatment for a host of neurological problems.
That's trippy! I wish I COULD get a local nerve block. you seem to have done well with it. Because I have known nerve injury and had a repair my surgeon and the anesthesiologists at my last procedures insisted on using a general. There is increased risk. I don't know if that applies to a single injection or only to longer term infiltration. It sounded like a forever thing. I am considering oral sympathetic blockade as an alternative...will post about that soon.

Thanks, Littlepaw
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Old 02-06-2015, 06:10 PM #2
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Well, I have joined the ranks. Saw neuro today and he has no doubt that I have CRPS. Came right out without my even asking. I believe he's accurate. I think I have been in hopeful denial but I guess once you add painful burning stings + color and temperature change over months and months post-op what's that spell? He reiterated that this is a spectrum and that a lot of people get better with time. Was against any remotely invasive/aggressive treatment, says often people do that and they get worse. I think for me not getting a lumbar block was possibly best since I have had a degree of improvement from the beginning. I have probably read too many people write that they had spread afterwards. I might consider an oral sympathetic blocker like Phenoxybenzamine. For the time being I am told I am doing all the right things, exercising and increasing activity as able. Now if I could just keep my foot down...

Poop, at least I'm among family..
Littlepaw
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Old 02-06-2015, 09:41 PM #3
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Well, I have joined the ranks. Saw neuro today and he has no doubt that I have CRPS. Came right out without my even asking. I believe he's accurate. I think I have been in hopeful denial but I guess once you add painful burning stings + color and temperature change over months and months post-op what's that spell? He reiterated that this is a spectrum and that a lot of people get better with time. Was against any remotely invasive/aggressive treatment, says often people do that and they get worse. I think for me not getting a lumbar block was possibly best since I have had a degree of improvement from the beginning. I have probably read too many people write that they had spread afterwards. I might consider an oral sympathetic blocker like Phenoxybenzamine. For the time being I am told I am doing all the right things, exercising and increasing activity as able. Now if I could just keep my foot down...

Poop, at least I'm among family..
Littlepaw
Looks like you and I have had similar days today.
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Old 02-07-2015, 01:13 PM #4
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I suggest you read the "The Outcome of Complex Regional Pain Syndrome Type 1: A Systematic Review". Of everything I have read, it was far and away the most informative piece on the subject.
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Old 02-07-2015, 02:00 PM #5
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Quote:
Originally Posted by HarryDresden View Post
I suggest you read the "The Outcome of Complex Regional Pain Syndrome Type 1: A Systematic Review". Of everything I have read, it was far and away the most informative piece on the subject.
It is comprehensive but excludes patients with nerve injuries, so I'm not sure how applicable that info will be for Littlepaw.
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