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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Does anyone have one? I am scheduled for an implant soon and was wondering about the recovery? If I'll need help at all at home afterwards?
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#2 | |||
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Member
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Hi Jane,
I don't have one but was chosen for one. I just wanted to wish you luck in whatever you decide and hope you find relief...
__________________
Hope for better days..... Russ okska'sssini ómahkapi'si . |
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#3 | ||
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Legendary
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Quote:
You could also ask over on the SCS & Pain Pumps Forum There are also useful links and resources in the Sticky threads at the top of the forum. |
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#4 | ||
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Magnate
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#5 | ||
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New Member
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I had a spinal stimulator implanted in 2007. It was the best decision I ever made. My beautiful son would not be here had I not gotten it. I will say it does not get rid of all the pain but makes it tolerable. Always make sure you get a trial run first before you have it permanently implanted as it does not work for everybody. I had already undergone 13 surgeries before I had the implant on my ankle and leg so the surgery was pretty simple for me compared to what I had already been through. I do know they make them much smaller now. Only advice I can give you is be careful when leaning back in a chair because it can get caught on the battery and that hurts. They place it under a muscle. Mine is in the lower part of my back where it bends so I can sleep on my back without any discomfort. Wishing you lots of luck and if you have anymore questions, please feel free to ask me. I am due for a battery change so I will probably have another lead put in because they only had to use 1 to get my pain spot. You can have up to 4. Then again that was in 2007.
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#6 | ||
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Junior Member
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Thank you everyone. I did the trial and had some relief. I have the implant scheduled for March 6th. I just hope it makes it so most days I want to be alive. I know it's not a cure but some relief will be welcomed. My dr said its that or a morphine pump
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#7 | ||
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Newly Joined
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I have had my stimulator since July 31, 2014. It worked great at first but after 2 months it stopped being effective. One side effect that the doctors don't warn you of that is rare but can happen is that it can cause you to randomly fall. I had that happen from day one when the stimulator was put in. I am now having it removed on Wednesday Feb. 4th. This is just my experience with it. I know some one who has had theirs for years and it is very effective, each person is different. As for the recovery I found it to be pretty easy of course you can't get the site wet, and my doctors had me where a brace to keep me from bending and twisting for 6-8 weeks afterwards. I would recommend having some help at home for a bit because we never realize how much we bend and twist each day.
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"Thanks for this!" says: | ger715 (02-08-2015) |
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#8 | ||
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New Member
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I have had mine for almost 4 years. Depending on where the implant is placed depends on your recovery. Mine is a single lead up my spine to the base of my neck. The battery is implanted in my right hip. I had to wear a neck brace for 6-8 weeks to be sure I didn't move my neck too much so the lead would heal in the proper place. The battery site was tender and actually looked much worse than it felt.
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"Thanks for this!" says: | ger715 (02-08-2015) |
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