Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-27-2015, 04:12 PM #1
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I still can't put full weight down on my left leg. I am using a walker. Next Monday I will be getting the permanent SCS put in. The trial was great. I am hoping I'll be able to be full weight bearing. Some days I just want to scream about how long this is taking. I'm just feeling overwhelmed with all this right now...
It DOES feel like forever, doesn't it? I shed a lot of tears in the last couple of years. It takes as long as it takes. Don't give into the desire to push to full weightbearing too quickly, especially if the SCS makes you feel great. So tempting - but you can really mess up your foot/ankle. Better to have good heel to toe motion with the support of the walker first. As you know it is easy to tear something that is not accustomed to being under full load. I hope you have a nearby pool! I transitioned to a cane for a while, using it on the good side to stabilize the weak - it helped a lot till I could ditch it. My PT also had me do core exercises because my abs and back were not keeping me stable enough (allowing me to "cheat" with a really messed up leg/hip motion) the "bird-dog" was especially helpful with the arm and opposite leg up.

Best of luck next week on the SCS! Hang in there and go scream in your closet if you have to - God knows I did.

Sending Healing Love - Littlepaw
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Old 01-29-2015, 02:02 PM #2
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Thanks. Unfortunately I do not have a pool near me. I know I can't jump into full weight bearing. I just got a knee brace for my left knee, so that will help some with the stabilizing. I go for pre-op tomorrow. I'm feeling torn. My mom just had neck surgery and she was having chest pains. So now I'm sitting in her room waiting for a doctor. She was supposed to come home today, but now we are unsure. Now I wish my surgery was later, because I don't want to leave her side. When it rains, it flipping pours...
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Old 01-29-2015, 04:36 PM #3
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I am glad you are being careful - difficult when the mind is ready but the body is not able. Sorry to hear about your Mom. I hope she is on the mend soon. It sounds like you have a lot of stress right now.

I am sending more healing love....
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Old 01-29-2015, 07:46 PM #4
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CRPSsurvivor,

Thanks for checking in on your journey. We're all on one of those in one way or another.

You are doing all the right things in my opinion. But slow and steady and keep managed expectations.

Getting back to your baseline will likely take some time. It sure did for me. I have CRPS in my right foot. I'd have to say that my physical therapist was instrumental in me knocking this thing back, albeit a somewhat altered gait.

Best of wishes to both you and your mother. My 91 year old mother is in a nursing home and just had a stroke last week (4th one). But she is coming back once again. The power of the human spirit is just unreal. I take my motivation from her.
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Old 01-30-2015, 10:27 AM #5
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Thanks littlepaw and birch lake. My mom went home last night. She hurting but doing ok. Monday she will see her new heart doctor. Monday is my surgery. I am now on my way up for pre-op. I hate this 2 1/2 hour trip. We are spend the night before up there to save time. Ikeep everyone updated...
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Old 02-02-2015, 08:30 AM #6
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Originally Posted by CRPSsurvivor View Post
Thanks littlepaw and birch lake. My mom went home last night. She hurting but doing ok. Monday she will see her new heart doctor. Monday is my surgery. I am now on my way up for pre-op. I hate this 2 1/2 hour trip. We are spend the night before up there to save time. Ikeep everyone updated...
It's Monday! I hope all goes well and you have a not too bumpy ride home. I am sending speedy recovery thoughts.
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Old 02-02-2015, 04:21 PM #7
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I had my surgery. It went really good. We just stopped to eat. I'm almost half way home. I'm getting great coverage. I'm dealing with the post-op pain. I go back up in 9 days. I'll try to keep everyone updated. Thank you so much for the hugs littlepaw...
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Old 02-03-2015, 11:28 AM #8
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The surgery went really well. I am dealing with to post-op pain. I have great coverage. I go back up n the 11th. It has cut my CRPS pain in half. I expect it to help more as the post-op pain lessens.
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