Oh Faith, I also wanted to make a comment about the spreading. My CRPS spread rapidly from a small circle on my right foot to my whole foot to my ankle to my lower calf to my upper calf to my knee to my lower thigh to my upper thigh to my hip and now to my left leg. The spreading started in early January. None of my doctors have been able to stop the spreading and from what I've researched, there isn't much that can be done about the spread. My CRPS has spread while I was feeling mostly pain free from a nerve block. I have tried everything I can think of to stop the spread and nothing has helped (meds, meditation, yoga, PT, vitamins especially vitamin C, therapy, and rest). I was trying to control the uncontrollable, and to a certain extent, I feel that my fighting this condition didn't help. Accepting it for what it is has been more helpful to me, though it likely won't stop spread if this disease wants to keep spreading. But I do very much hope that the spreading can be stopped in your case.
Quote:
Originally Posted by maygin
Faith,
Another poster provided information for Dr. Moskovitz. He's who I see - he's an orthopedic surgeon who specializes in spine injuries and sits on the RSDSA board. My original injury was in my right foot, but he sees me because he is very interested in RSD and has been really helpful. He's my "primary" doc and helps me manage all the other doctor's I deal with.
The Medstar National Rehabilitation hospital is where I go for PT (in OCOR and I see Greer) and for pain management (I see Dr. Numsuwan).
I saw a neurologist at Medstar Washington Hospital Center that Dr. Moskovitz recommended; however, I only saw him once and he confirmed I have CRPS and further discussed my treatment plan - but I saw him after months of dealing with other doctors and having a treatment plan in place that was showing improvement. So I don't think he wasn't to step on any toes and so I haven't seen him since. His name is Dr. Michael Batipps. He's very highly rated and I felt he was a very good an thorough doctor, but it was very hard to see him.
Most of my care is through the Medstar hospital system, including for things outside of my CRPS (like migraines). I've had really positive experiences for the most part, but my first orthopedist was not great, though he did diagnose me with CRPS 3 months after my injury. I hope this helps! Feel free to PM me for more information.
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04-20-2015, 12:03 PM
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