Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-04-2015, 07:50 PM #1
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Thanks! I think I will try and get it pulled quickly.

I would love to go early and relax a bit beforehand but they have suggested I stay 2-3 days extra on the back end, and since we were just there Jan. 16th for a few days, and will have to go again for follow up 4 weeks post ketamine, I feel like we're hemorrhaging money, so I don't think we'll be able to do either the early stay or the warm pool. We've found a good place to stay with Hotel San Carlos for our last visit. The beds are good, and it was a decent hotel at about $100 a night. They have an outdoor pool but not anything that looked overly inviting. Did I mention the bed was great? Shower was great too. Overall the room was nice. Shocking considering how expensive other hotels in the area are.

I am really hurting today. I hate to complain about weather because I know it's been crazy for almost all of us, but man.. these 30-40 degree swings with snow then sun are terrible! I am ready for this treatment! Even if it can just turn the volume down a bit.. that would be fantastic! That is my wish for all of us.
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Old 02-04-2015, 08:19 PM #2
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Adds up fast for sure. If the stay is too big a hardship it might be worth checking in with the medical center's social work/case management department. Many hospitals and most education affiliated medical centers have lodging that is underwritten by their foundation or another charity. Sometimes patients/family can self refer but often the social worker needs to make the referral. I have seen a lot of families finances saved by this service when needing extended care.

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Vrae (02-05-2015)
Old 02-04-2015, 09:15 PM #3
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You might want to check Hotwire for hotel rooms. Often rooms near the airport will be less expensive and have nice warm pools, and then you could move to the closer location after a few days.
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