Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-07-2015, 09:05 AM #1
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Russell Russell is offline
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Russell Russell is offline
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Originally Posted by Always_Believe View Post
Finally got in to see a PCP after relocating from TN to IL. Explained everything that was going on since my fractured patella in Sept. 2013; diagnosed peroneal nerve palsy April 2014; pain; numbness; tingling; swelling; etc.
She said "I'm leaning towards RSD due to all your symptoms and history of surgery/injury but I would like to have it confirmed by an ortho." Ordered gabapentin for now; will add amitriptyline in 2 weeks; no pain management referral because she wants to see if the gabapentin/amitriptyline helps enough. Told me "Don't expect miracles. I can't promise functional return."
I had zero achillies reflex; zero plantar reflex; not sure what patellar reflex tested as because she knocked me several times there.
From my little bit of research on RSD/CRPS, I believe because of the diagnosed nerve damage it falls more towards CRPS and I need to see someone with more experience in both diagnoses...anyone with more information/experience in this? What say you??
After reading your post I say it does sound like CRPS. If that's the case I'm sorry to report that there's no known cure. Only medicating the symptoms to manage the pain.
Your doc is on the right track only I also take Cymbalta as well as Gabapentin and Amitriptyline. That cocktail works fine for me and keeps me from going the opiate route.
Best of luck to you finding relief...
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Old 02-07-2015, 11:45 AM #2
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After reading your post I say it does sound like CRPS. If that's the case I'm sorry to report that there's no known cure. Only medicating the symptoms to manage the pain.
Your doc is on the right track only I also take Cymbalta as well as Gabapentin and Amitriptyline. That cocktail works fine for me and keeps me from going the opiate route.
Best of luck to you finding relief...
I think one of our first steps is ruling out a new knee injury (last ortho suggested that possibility in July, but haven't been able to get into a doc for an MRI) as well as ruling out DVT. While I had some significant swelling/discoloration/pain when I was on a cruise (celebrating my youngest daughter's HS graduation...expecting I would have been fully recovered when I booked it), and ship medical did a d-dimer test that was negative, nothing excludes a DVT like a venous doppler flow study My new PCP wants that stuff evaluated before doing much more treatment. I only hope no one wants to do another EMG/NCS...that about set me over the edge!!!! Maybe I can get some meds to perform that
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