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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-04-2015, 07:16 AM #11
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Originally Posted by Always_Believe View Post
Seems obvious to me that the "tingling"/"stabbing"/"shooting" type pain descriptors would commonly fit with RSC/CRPS/Nerve damage. So I've been struggling with identifying some of the pain I have been having and I haven't seen them as descriptors relating to any of those diagnoses.
Background (for those that haven't already read any of my long-winded posts): I have peroneal nerve palsy in my left lower leg from complications following a fractured patella. I was diagnosed with RSD in that leg about a month ago. I am scheduled for an MRI tomorrow on my left knee to rule out any current internal knee issue.
Pain scenarios: The outer side of my left ankle gets to feeling like I have sprained it. Like that swollen, hurts constantly, feels worse than breaking something feeling. I can't identify any swelling and it randomly happens. Sometimes after walking a bit (okay, I guess that's when it occurs most often) but sometimes I will have not been able to do much other than go to the bathroom & back (side note: when I'm having those days, I really don't drink much so I don't make many trips).
The other scenario is this intense crushing feeling on the outside of my foot (nearer the ankle than the toes). It feels like the Jolly Green Giant is standing on that one spot.
Any of this common with RSD/CRPS??? Did I make any sense at all??
Hi AB,
Amazing to read about the exact same tingling and crushing feeling sensations I get.
I talked to my neurologist about it and she told me these pain sensations are a direct result from CRPS. The prescribed help was to take an extra dose of Gabapentin which I do and I get some relief. The pain is still evident but doable.
I sure hope you find relief...
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Old 03-04-2015, 07:36 AM #12
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Hi AB,
Amazing to read about the exact same tingling and crushing feeling sensations I get.
I talked to my neurologist about it and she told me these pain sensations are a direct result from CRPS. The prescribed help was to take an extra dose of Gabapentin which I do and I get some relief. The pain is still evident but doable.
I sure hope you find relief...
Thank you for making me feel 'normal' this morning Russell! Sadly, my neurontin rolled off my table & is currently playing hide & seek under my bed...even my standard morning dose will have to wait until I can get help retrieving it
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Old 03-04-2015, 05:34 PM #13
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Thank you for making me feel 'normal' this morning Russell! Sadly, my neurontin rolled off my table & is currently playing hide & seek under my bed...even my standard morning dose will have to wait until I can get help retrieving it

Hope by now you have found the hiding Neurontin. Best not to miss lost doses for very long.


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Old 03-04-2015, 05:39 PM #14
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Hope by now you have found the hiding Neurontin. Best not to miss lost doses for very long.


Gerry
I'm very good at hide & seek. Discovered it on my return from the morning bathroom break...lol

Neurontin is on track!
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Old 03-04-2015, 06:58 PM #15
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I'm very good at hide & seek. Discovered it on my return from the morning bathroom break...lol

Neurontin is on track!


GReeeat !!!!!!


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Old 03-11-2015, 08:32 PM #16
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I have described the pain to the doc as a lava flow that starts as a pool at my shoulder and moves down to my hand, depending on how bad I ticked it off. The shoulder and arm always burn, but it turns to lava when angry. The normal burning, funny how the burn is even remotely considered normal, is usually accompanied with a feeling of pressure, like a constant band around the area. The doc kind of looks at me funny when I explain it, but I think it is a fitting description.

Just wanted to jump in and say HI!! And I'm sorry that you have had to join the ranks here
Quick question...since you have this in your shoulder as well, do you ever feel as if your shoulder is dislocating when you move it? I have noticed that in the last few months and I just get a raised eyebrow from the ortho lol. He believes its the CRPS but he isn't a specialist.
Anyway...welcome to the group!!
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