Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-06-2015, 04:02 AM #1
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Default RSD And Flare Up

Hi everybody. I'm a newbie and looked every where on the site for answer to this one. Has anybody had their RSD/CRPS flare up when their pain Medici e was increased?. It happened to to me and now I am on zero be a use of my flare up. This might help explain why I am awake at 4 am...😕
Acoya143 is offline   Reply With QuoteReply With Quote

advertisement
Old 03-06-2015, 04:19 AM #2
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Default

Quote:
Originally Posted by Acoya143 View Post
Hi everybody. I'm a newbie and looked every where on the site for answer to this one. Has anybody had their RSD/CRPS flare up when their pain Medici e was increased?. It happened to to me and now I am on zero be a use of my flare up. This might help explain why I am awake at 4 am...😕
Please excuse my typos. My flare ups make me jerk and shake sometimes. Its hard o type. I meant to say that I am on zero medication at this time for it due to the flare-up reaction
Thanks in advance.
Acoya143 is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 04:48 AM #3
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

If you state the med that would help with feedback.
LIT LOVE is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 05:29 AM #4
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Default

I'm sorry I didn't know that could state the names here. I was on 10 mcg of Butrans which as diet 20 mcg. The same day the RSD move from my feet and left hand up to my back and to my mouth. It was incredibly painful. It felt and looked like my whole body had chapped too. After the med was stopped it took several weeks for evčrything to calm a bit.
Acoya143 is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 07:33 AM #5
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Default

Sorry again yikes typos! That was the Butrans was 10 and then the Doctor doubled it to 20 mcg
Acoya143 is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 07:54 AM #6
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Hi Acoya,
Did you sop taking meds on your own? Just asking...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (03-06-2015)
Old 03-06-2015, 08:32 AM #7
St George 2013 St George 2013 is offline
Member
 
Join Date: Sep 2013
Location: Georgia
Posts: 905
10 yr Member
St George 2013 St George 2013 is offline
Member
 
Join Date: Sep 2013
Location: Georgia
Posts: 905
10 yr Member
Default Welcome Acoya

I am so sorry you are having so much pain. I have small fiber neuropathy but your medicine caught my attention.

I am also on the BuTrans patch. I started at 5 mcg/hr, and each month since have gone up (to 7.5 then 10 and will start the 15 this Saturday).

I've only had site reaction from the patch that lasts a week after taking it off. Red and angry skin but it slowly fades away.

I have not have much contact with anyone that uses these patches but I hope someone comes along that can help you.

Please keep us posted and I pray your pain lessens quickly.

Debi from Georgia
St George 2013 is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 01:16 PM #8
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

The whole point of Low Dose Naltrexone is to achieve pain relief without side effects. I don't think increasing the dosage is supposed cause greater pain relief. What you're taking seems to be a variation of the same type of med.

Your original dosage by patch is probably stronger than Low Dose Naltrexone.

This link has info about both Low Dose Naltrexone and the idea that opiates can increase pain. (What you were on is a synthetic opiate.)
http://painsandiego.com/category/low...altrexone-ldn/
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (03-18-2015)
Old 03-06-2015, 05:49 PM #9
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Default

Quote:
Originally Posted by Russell View Post
Hi Acoya,
Did you sop taking meds on your own? Just asking...
Hi Russell, thank you for the reply. I believe it was mutual. This was last month and here I am in another flare up. Has you or anyone else taken Mobic for the inflammation? I start that tonight.
Acoya143 is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 05:53 PM #10
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Acoya143 Acoya143 is offline
Junior Member
 
Join Date: Jan 2015
Posts: 9
8 yr Member
Default

Quote:
Originally Posted by St George 2013 View Post
I am so sorry you are having so much pain. I have small fiber neuropathy but your medicine caught my attention.

I am also on the BuTrans patch. I started at 5 mcg/hr, and each month since have gone up (to 7.5 then 10 and will start the 15 this Saturday).

I've only had site reaction from the patch that lasts a week after taking it off. Red and angry skin but it slowly fades away.

I have not have much contact with anyone that uses these patches but I hope someone comes along that can help you.

Please keep us posted and I pray your pain lessens quickly.

Debi from Georgia
Thank you Debi! This is all kind of new to me. I was rearended by a truck and had emergency spinal cord surgery for a cmpressed spine. Its been down hill from there. That was 1.5 years ago.
Acoya143 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
what a flare gabbycakes Reflex Sympathetic Dystrophy (RSD and CRPS) 34 03-26-2012 08:50 AM
what to do during a flare up mspennyloafer Peripheral Neuropathy 4 11-13-2011 06:40 PM
FLARE! need I say more? cindi1965 Reflex Sympathetic Dystrophy (RSD and CRPS) 17 02-13-2010 11:56 PM
pseudo flare while still in a flare? legzzalot Multiple Sclerosis 9 09-29-2009 05:58 AM
Flare up coletaterbug Multiple Sclerosis 5 09-14-2008 03:09 PM


All times are GMT -5. The time now is 07:39 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.