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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Magnate
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I've dealt with RSD/CRPS in my upper and lower limbs and in my face, and from my experience as well as others I've talked to, find it improbable that you had it in your face since 2007 without being diagnosed. You can rest a limb without moving and get some relief. With your face it's hard to avoid speaking, eating, and drinking--and gosh even breathing are an issue.
Surgical procedures aren't ideal, but spread can be minimized when precautions are taken. The surgeon should be careful to cause as little trauma as possible to the area--frankly if they were more careful in the first place many of us that develop RSD/CRPS from a surgery could be saved a life of pain. Undergoing a block right before surgery can help, Ketamine can be used as part of the anesthesia, and Lidocaine patches can be used around the surgery site during recovery. (I underwent surgery on the limb that was my original RSD/CRPS site without complications and I'm betting newer surgical protocols are even better now.) |
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"Thanks for this!" says: | Always_Believe (03-07-2015) |
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Quote:
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__________________
Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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Magnate
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Quote:
I had my first bad reaction to a stellate ganglion block last week. Lidocaine patches to my throat an well as Epsom salt cream did the trick after a few days to reduce my pain and swelling that had been escalating to a scary degree. |
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"Thanks for this!" says: | Always_Believe (03-08-2015) |
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#4 | ||
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Quote:
__________________
Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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Magnate
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"Thanks for this!" says: | Always_Believe (03-08-2015) |
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Went to ortho Monday afternoon. New orders for:
~PT 2x/week for 6 weeks ~Rollator walker ~Referral for neuro Went from ortho to PCP. New orders for: ~Increase gaba to 400mg 3x/day ~Alendronate 70mg weekly ~bupropion 150mg 2x/day Discussed all things RSD related. Still will not sign my physical for my nursing final (I'm going to have to start accepting some stuff I don't want to accept here) On the "GO ME!" side...I have cut my smoking in HALF with a goal of completely quitting by April 5.
__________________
Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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"Thanks for this!" says: | Littlepaw (03-11-2015) |
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Senior Member
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Good news on the visits. It's great you get to start PT. I really liked my walker, it's a lot easier to replicate a natural gate than on crutches for sure. Glad to hear about the alendronate, I am so hoping that gives you better pressure tolerance and less pain. Keep it up on kicking the cigs, your recovery will only go up from there!
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"Thanks for this!" says: | Always_Believe (03-11-2015) |
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