Thank you! Her injury came when she swung the softball bat, she felt pain, took off her batting glove and her fingers and palm were discolored. In the 2 years she's had this she has continued to use the arm (cheerleading etc.) I will read all of the sickies to see what information I can get. The ortho that saw her and tested for TO and the other suspect issues seemed knowledgable. It's so confusing...some things fit, some things don't.

Here are some interactive symptom checkers that will help to find out if trigger points might be a factor -
http://www.pressurepointer.com/pain_reference_chart.htm
http://www.myofascialtherapy.org/symptom-checker/
http://www.triggerpointproducts.com/checkyoursymptoms


Some TOS info links from the sticky threads -
http://www.nismat.org/patients/injur...in-in-the-neck

She is not "guarding" the hand..has quit softball, but still cheerleading. My biggest, scariest worry now is her brain and eye. Can this cause blindness? Is there anything that can be done to protect from further damage to her eye? We are going to start on antidepressant for nerve pain...wondering if this will help the eye.

Wow my heart goes out to you. My son Matthew is 13, he broke his ankle in 3 places last September, had surgery for hardware implant, and was diagnosed with CRPS just after Christmas. He has been doing physical therapy in a pool and is about to graduate to the physical therapy gym. That's great that she is still active, I'm new to this crazy world of CRPS but from what I understand, continuing to use it is critical to recovery and keeping it from progressing. Physical therapy is the standard "treatment" and anything else is really geared toward managing pain and making physical therapy tolerable. Have you tried finding a pediatric pain management doctor? They would be your best bet for a doctor familiar with CRPS and how to treat children/teens in particular. Our son is seeing one at Children's Hospital here in Michigan and he has him on a vitamin regime that eases the pain (vit. C in particular), although it takes 6-8 weeks for the vitamins to start having an effect. He is on Vitamin B12, Vitamin C (500 2x day), Vitamin D, Magnesium, and multivitamins. He hasn't been able to tolerate side effects of pain meds. You do want to avoid any opiates for pain b/c they can have the opposite effect with this condition. Also, avoid icing it, the cold damages the myelin sheath around the nerves and worsens the pain. (Been there, done that, he was moaning and near screaming in pain and we couldn't figure out why it got so bad. If I were prone to mom guilt, I could write a book.) He does find relief from a heating pad and it may help a little with the circulation issues that cause the color changes. His physical therapist had him start wearing a compression sock. I don't know if there's anything similar to promote circulation for the arm.

There's lots of good support for you here, you're not alone!!