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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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16 yr old just diagnosed with RSD..No help :(

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Old 03-09-2015, 08:06 PM #1
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Seconds on checking for TOS, a tricky diagnosis to make but an important rule out. Cleveland Clinic is also an option as is Stanford, great pain program there.
It's great she is active, that makes all the difference. Not everyone has allodynia. CRPS is a spectrum and not all symptoms are present in everyone or all the time. Take a peek at the Budapest criteria...

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Last edited by Littlepaw; 03-09-2015 at 08:09 PM. Reason: Cuz
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Old 03-09-2015, 08:32 PM #2
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Originally Posted by Littlepaw View Post
Seconds on checking for TOS, a tricky diagnosis to make but an important rule out. Cleveland Clinic is also an option as is Stanford, great pain program there.
It's great she is active, that makes all the difference. Not everyone has allodynia. CRPS is a spectrum and not all symptoms are present in everyone or all the time. Take a peek at the Budapest criteria...

Littlepaw
T.O and Carpel tunnel, cubidal tunnel were some of the firt things they suspected. She had 2 nerve tests, and 5 MRI's before they came to this conclusion
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Old 03-09-2015, 08:49 PM #3
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Is she guarding the hand? This can cause problems travelling up the arm, into the neck and down her back. (been there)

Have her try working with a massage therapist at least on her neck and back--that might take care of the headaches. (helps me!)

Swimming in warm water might help her to start moving. (helps me!)

Maybe have her try Tai Chi or a low impact yoga class? (has helped me!)
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Old 03-09-2015, 09:12 PM #4
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Does she have neck/shoulder/upper back pain? ( muscular based)
Trigger points in neck or upper back? (headaches/ blurry vision/eye pain)

TOS is as rare as RSD so unless the drs were experts in TOS they might be basing the dx on limited information..

And it is possible to have both RSD & TOS unfortunately....
Reading both forums sticky threads will help you to see if, or what might fit best..

What was the original hand injury?
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Old 03-09-2015, 09:42 PM #5
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Originally Posted by Jo*mar View Post
Does she have neck/shoulder/upper back pain? ( muscular based)
Trigger points in neck or upper back? (headaches/ blurry vision/eye pain)

TOS is as rare as RSD so unless the drs were experts in TOS they might be basing the dx on limited information..

And it is possible to have both RSD & TOS unfortunately....
Reading both forums sticky threads will help you to see if, or what might fit best..

What was the original hand injury?
Thank you! Her injury came when she swung the softball bat, she felt pain, took off her batting glove and her fingers and palm were discolored. In the 2 years she's had this she has continued to use the arm (cheerleading etc.) I will read all of the sickies to see what information I can get. The ortho that saw her and tested for TO and the other suspect issues seemed knowledgable. It's so confusing...some things fit, some things don't.
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Old 03-09-2015, 10:49 PM #6
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Here are some interactive symptom checkers that will help to find out if trigger points might be a factor -
http://www.pressurepointer.com/pain_reference_chart.htm
http://www.myofascialtherapy.org/symptom-checker/
http://www.triggerpointproducts.com/checkyoursymptoms


Some TOS info links from the sticky threads -
http://www.nismat.org/patients/injur...in-in-the-neck
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Old 03-10-2015, 08:18 PM #7
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Quote:
Originally Posted by Jo*mar View Post
Does she have neck/shoulder/upper back pain? ( muscular based)
Trigger points in neck or upper back? (headaches/ blurry vision/eye pain)

TOS is as rare as RSD so unless the drs were experts in TOS they might be basing the dx on limited information..

And it is possible to have both RSD & TOS unfortunately....
Reading both forums sticky threads will help you to see if, or what might fit best..

What was the original hand injury?
She is not "guarding" the hand..has quit softball, but still cheerleading. My biggest, scariest worry now is her brain and eye. Can this cause blindness? Is there anything that can be done to protect from further damage to her eye? We are going to start on antidepressant for nerve pain...wondering if this will help the eye.
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