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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Thanks my injury is from a fall, multiple breaks to the fibula and a shattered ankle. I do lots of range of motion exercises on my ankle, it's a long time habit and I guess nervous tick.
Yes it's a heel fracture, but still over the course of 3 months and 2 orthos there have been no instructions of rest or non weight baring, or even pain management. There was even refusal of pain management for the crps pain for the whole length of that time. My boyfriend finally went to my primary care dr and told him i could barely walk and took the bonescan report to show him just to get me some relief. I am honestly thinking that it is a combo of depression meds that might have set off a chain reaction. I was on viibryd 40mg and wellbutrin 300mg daily when I started having seizures. After all of the neurologic tests, it was determined that the meds were in fact the cause. They were causing what you might call miss fires in my brain. Sending mixed signals. All of this happened together, the seizures started back in August, the noticeable changes to my leg and ankle the end of october first of november. |
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#2 | ||
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Member
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Welcome and I am sorry under the circumstance we all have to meet. I agree, having someone so young to look after must be an interesting challenge with CRPS...don't let others dictate how you should be 'playing' with her. I had a professor in college say some comforting words; I was worried that my child wasn't getting a real childhood because of having to play on a cement garden most of the time, he said, but she IS getting a childhood...made sense to me.
Also, when my ankle broke due to CRPS, I had to ask my ortho doc to not put me in a cast. At first he was very firm and ridged with me about being in a soft boot, that I wouldn't heal right because I wouldn't follow the proper directions of when I could actually walk...I told him to give me a chance and I followed his directions and my bone healed...I find it a challenge to both us and the doctors' especially if we don't have a relationship with them yet. Keep us posted and keep up the fight. |
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#3 | |||
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Junior Member
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Two levels one is right medical treatment and plenty here can be wayyyyyyyyyyyyyyy more qualified than me. Second is partners understanding, I have whole nerve thing but several years ago I developed a balance condition with 24/7 tinnitus. Wife couldnt understand what tinnitus meant as a condition so I played a sound similar to what I hear thru stereo anf asked her to do her social media thing and turn the sound off if its debilitating she lasted 7 mins saying how do you cope. Your partner needs to understand what your condition means in terms he can understand so if itd like dead leg then pain as it wakes ask him to sit on leg then experience or if you can think of something less painful for him. Unfortunately many peoples empathy often only applies to what they can see, often if unable to see they revert to the buck up attitude,
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"Thanks for this!" says: | shelbie4u (03-12-2015) |
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