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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Thank you so much for the spoons, Rogue. I appreciate the hugs and nice post back from ya. I have been up all night, in pain and my little girl had a slumber party! oh, lucky me, huh? LOL well.. now.. off to bed I go, with my best friend, my heating pad
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#2 | |||
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Have a wonderful night, dream deep and colorful
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There are only two types of people in this world... those who bring you peace and those who don't. |
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#3 | |||
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Desi,
I'm so sorry it was changed. Let's hope that when your doc call the other doc that maybe they would be able to get you in even sooner. You know how docs take care of each others patients when the docs call each other. Till then, tell the birds to hush, sleep, and hopefully when you get up things will have happened for you. Mary |
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#4 | ||
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Hi Desi, I'm sorry you're having such a hard time. I went through a similar experience last year at this time. By the time the pain clinic would see me, my RSD had spread from my foot up my leg above my knee. Little wonder the nerve blocks didn't work. Then they wanted to do a sympathectomy....I ran away and never went back. You are not alone in this medical nightmare. I don't know if this will help you at all but I'll put it out here for you to decide. When I reached the point that none of the usual RSD treatments had worked I didn't want to go back to the pain clinics for pain meds. So, I searched the RSD web sites and came across a place called The Arthritis Center which turned out to be 15 minutes from my home. Who would think a place with that name would treat RSD. I looked at their website and sure enough they specialize in treating all sorts of painful disorders especially RSD. I went and am so happy I did. They are great in trying any med you feel would be helpful. They are not afraid to give as much pain med as you need and they allow you to have control over what's being done to you, So, what I'm trying to say is, if you reach a point where pain clinics aren't working for you, there are other things out there. Many rheumatologists as well as physical medicine centers treat this condition as well. It took me a lot of searching to find them but they are out there. I know what you are going through and feel so bad. I wish there was something I could to to help. Please let me know how you make out. Jeannie
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#5 | |||
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Hi Mary.. Hi Jennie.. Mary, I sure do hope things work out for the best too. I finally fell asleep at 7:30 the kiddies (My daughter had a sleep over) and they were up all night! got up at 9 this morning(The kiddies that, is) I thought they would sleep in longer! nope! anyway, thanks!! Jennie,Good idea about going on the RSD board and finding RSD. I will "check that out" wonder if Ohio has some better ones than Clev. All everyone keeps telling me, is Clev. is the best place to go. If I have to wait I will.. If my RSD spreads, I'll just show up at the ER center like that other doc. told me to do and insist I need HeLLLLLLLLLLLLLLLLP! LOL
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#6 | ||
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Call EVERY day and ask for a cancellation. I was able to get in to my doc by doing that. Make sure you speak to someone each time. As silly as it sounds, people do cancel.
Hugs, and good luck.
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. . CHRISTINE . . I AM NOT A DRUG SEEKER, I AM A PAIN RELIEF SEEKER. |
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#7 | |||
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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