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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-14-2007, 12:21 AM | #1 | ||
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Junior Member
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Broke my Arm ulnar fracture (non displaced)
The bone (that shows no sign of union after 9 weeks)is the least of my concerns. BTW I'M 49 and I live in Huntington Beach ca What worries me is the motor skills, I have sensory function but all digits(the fingers) have lost motor function they look like swollen italian sausages, spoiled ones in 9 weeks (8 doctors) no one has mentioned a diagnosis or prognosis so after many hours of research on google I've been educated on nerves and hand function I'M SCARED Dr.s have left me in the dark for 9 weeks, Two of them said you have RSD And reffered me to pain management the burning from the tips of my fingers to deep into my shoulder is killing me, and I'm not sleeping anxiety running rampant ps I know someone who has been full circle for 9 years with RSD I know the ropes never dreamed I'd go through this too |
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06-14-2007, 12:55 AM | #2 | ||
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I'm Sue the dork from PN,i just wanted to say welcome. And yes pain
is scary and it HURTS. Dr's. can be flakes and i'm sorry your having so much trouble. Peeps will be around soon to help you. RSD folks are all ages,and not so dorky as i. Hang in there they will be here Sue |
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06-14-2007, 03:08 AM | #3 | |||
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Hi, Donny the Dork Nice to meet you, although I wish it were under different circumstances.
Sounds like you are having a very rough time of it... I sure hope the Dr.s get their s**t together soon. You need to push them hard... as I'm sure you have read, and know from your friend, time is of the essence. There are many of us here who didn't get their dx's until it was too late to have the full range of treatment options. I wish you the best of luck, Donny. Come on in and vent anytime. But lucky you (and verrry unlucky for her), you already have a source of knowlege and comfort close at hand. Gentle hugs to you both. Rogue
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There are only two types of people in this world... those who bring you peace and those who don't. |
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06-14-2007, 03:56 AM | #4 | ||
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Hi Donny,
Welcome to the forum. How did you break it? I had a colles fracture (stupid fall), ulnar and radius, few hand bones...and still have problems from the ulnar, a small piece of which shattered at the wrist end, still got the bits in there. Ulnar breaks seem to cause ongoing problems. How did they set and cast it, and what tests have they done? I assume x-ray. Non-healing is worrying, but it often takes longer if you're a bit older. When you say they've said nothing, is that really nothing? Did it ever not hurt, or was it like this from the word go? Not that I'm a doctor... How do you know about the loss of motor function, I hope you aren't trying to use it; I couldn't use my arm for ages, but I didn't try until it had healed and was uncasted. It sounds as if you're still in the early stages of mending, don't lose hope, it could be almost anything at this stage, but you do need them to start looking properly, in my experience the docs treated all fractures the same and never looked for, or seemed to expect, problems, despite the fact that complications often happen. Don't lose hope yet, all the best |
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06-14-2007, 05:00 AM | #5 | ||
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Hi, welcome. I am in San Diego. My RSD is in my right knee/leg, so no comments about arms. Welcome.
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. . CHRISTINE . . I AM NOT A DRUG SEEKER, I AM A PAIN RELIEF SEEKER. |
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06-14-2007, 06:00 AM | #6 | |||
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Hey Donny.
My RSD started in my right arm after a fall. When are you going to see a pain dr? where did they refer you? they will hopefully be able to assess the situation and help deal with the pain and then sort a diagnosis out - it is scary though!! This pain is NOT fun to live with and it is scary if you don't know what is happening to your body! Take care and I hope the diagnosis gets abit clearer soon. Love Frogga xxxxxxx |
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