Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-25-2015, 08:09 PM #1
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default Concerned about treatmen//Status update for friends and family on NT :)

Hello Everyone!

Sorry it's been so long,but you all know how it gets! I hope everyone is doing well and living/loving the life we have!

So the last time I went in for a lidocaine infusion my CRPS was so flared up it was ridiculous. We found out that I had actually had a small piece of glass embedded in my left foot and did not know it , and it was infected. Which wreaked all sorts of havoc on the rest of my body because of my CRPS . Because of this stress and the flair from the glass being in my foot I developed new symptoms and nearly full body CRPS. I'm not sure what you have to qualify to have full body CRPS but not only was it in my legs my feet my entire left arm it was also moving into my right arm somewhat, but I was now experiencing CRPS symptoms in my face my mouth lips throat all of that was a really intense burning and numbness and tingling . It was pretty frightening to have all of these new symptoms crop up , it was also affecting my bladder and pretty much moving on my back I couldn't stand showers it was bad.

Thankfully the lidocaine infusion helped enough to where I was able to walk for a couple of months relatively pain-free. I still had pain flares if I wasn't careful and had to watch what I did but it was a lot easier to move around in my daily life.

So by February of this year the infusion had pretty much worn off so my doctor scheduled another lidocaine infusion for March 17. Unfortunately due to a whole bunch of stupid stress and drama related to my 18-year-old stepson and him trying to use the house is a party pad while I was in the hospital I wasn't in the best physical state due to the emotional distress during my treatment .

Because of all the stress I've had several new and disturbing symptoms arise, as well as I've had symptoms that had resolved before I had the last infusion, because I was able to get the glass removed from my foot before I had it done, come back. What's scaring me is the symptoms in my face my mouth my throat have all come back and stayed this time . Last time I have the infusion those symptoms had resolved and never came back after the infusion. Until last week when from the very first day I was in the hospital all the stupid stress happened . It was made worse compounded really because my fiancé is a trucker now a long-haul trucker and he's gone until April 30 and left the week before I had this in fusion planned. On top of all the symptoms that had resolved before coming back, I also have a new symptoms which are painful but also extremely disturbing feeling.
So March 19 the second day of my treatment I started feeling a hot burning ball in the center of my chest that just burned and burned and burned and had kind of a pressure to it. Then it felt like my heart was just pounding and pounding and pounding it felt like up a faster up always being slammed against the inside of my ribs I could actually visually see my hospital gown from my shoulders to my waist job with each heartbeat. When you're on lidocaine hi it can cause issues with your heart so of course this was disconcerting to say the least. So my doctor ordered an EKG and did a chest x-ray to make sure that the pick line was still improper placement and also they constantly have you hooked up to a heart rate monitor the entire time you're having the lidocaine infusion done so they can make sure to avoid any major complications. Normally even with CRPS in pain my heart rate generally stays in between 85 to 95 at most. Well along with the burning pain in my chest and that super strong and fast heartbeat feeling , my resting heart rate was now sitting anywhere between the 100-120 beats per minute. One time I stood up long enough to brush my teeth only and the nurse in the heart monitoring room ran in to make sure I was okay because my heart rate jumped up into the high 140's. I also normally even when I'm in a lot of pain have a really steady blood pressure. My blood pressure is normally 120-130 over 80-85. But between the stress and the pain my blood pressure was running from in between 140-157 over 90-105!!! I believe that was just a combination of the pain and all the excess stress which was just ridiculous when everyone knew I was in the hospital and needed to be kept as stress-free as possible. HA! So needless to say things didn't go as they were planned.

So what I'm mostly concerned about now that I'm out is my pain was so extremely high my stress was so extremely high while I was having the procedure done I'm worried that the Lidocaine Infusion won't work the same as it would've had if all of the stuff hadn't happened, and my symptoms hadn't flared up so badly! It's especially my left leg and foot to that is worrying me . It is social wrong and so bone deep and we more intense . The last time I had the infusion I had pain flare sure, but it fluctuated all over the place, up and down and to different spots all the time. The pain in my foot is just staying in and steady and strong and doesn't seem to be getting better at all. I know it's early and I need to give it some time to really see how it's gonna work within the next 3 to 4 weeks but still it just it doesn't feel right Or like did last time....... and I still have the burning pain in my chest mouth nose and throat that went away with the infusion the last time and it's still here so I guess I'm just worried.

Does anyone have any experience with massive stress and pain flares well having the infusion or another type of treatment and didn't resolve itself or did the treatment just not work?
CRPSsongbird is offline   Reply With QuoteReply With Quote

advertisement
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Family vacation coming up, concerned about long car journey Galaxy1012 Traumatic Brain Injury and Post Concussion Syndrome 2 10-15-2014 08:03 PM
Update Status Report on 37 New PD Drugs/Procedures in the Pipeline Tupelo3 Parkinson's Disease 4 03-28-2014 02:59 AM
friends and family moosey2me Reflex Sympathetic Dystrophy (RSD and CRPS) 7 02-10-2014 11:28 AM
Status Update on the Community DocJohn Community & Forum Feedback 2 11-13-2009 12:00 AM


All times are GMT -5. The time now is 01:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.