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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Can't catch a break...

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Old 03-29-2015, 10:34 AM #1
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Quote:
Originally Posted by catra121 View Post
Thanks everyone. Still having a rough time...hoping the visit with the dr goes well on Monday. This extra pain is really taking a toll on me...
Let us know what the doc says....it might just not only help you but others here. Sorry, about the extra pain.....
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catra121 (03-30-2015)
Old 03-30-2015, 09:44 PM #2
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Saw the dr today...looks like the cyst twisted and ruptured and that's why it's so painful. Dr said that it will take about 2 weeks for the pain to go away but that it should feel a lot better in about a week. she loaded me up with more pain meds and told me to rest for a week (ie...no working). I'm pretty bummed by the whole thing. This extra pain is really sucking all the energy out of me. At least I have my little princess to make me smile whenever I start to feel too low. I'm usually pretty good at staying positive and energetic even when I have bad flares...but this little episode has really just taken a toll on me.
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LIT LOVE (03-30-2015), Littlepaw (04-01-2015)
Old 03-30-2015, 10:13 PM #3
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Well, that's a relief that it should get better very soon.

And while I know you miss work, it's a good time to be playing hookie. They grow so fast and change so much that first year, it's amazing. Enjoy every moment.

BTW, have you thought about starting a Mommy and Me swimming class with her as soon as she's old enough?
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Old 03-31-2015, 12:38 AM #4
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Oh Catra!
You have every right to vent and NO need to apologize!!!! After having lost the pregnancy myself I believe due to complications from the medications I took for CRPS I can imagine your stress and worry. I sincerely hope and pray that everything will work out as beautifully and wonderfully as possible . I hope that with your pregnancy you're CRPS is pushed into remission if not just during but I pray forever.

Regardless of what happens with your CRPS I'm sure you will be blessed with such a beautiful baby. Please make sure to love that baby extra hard for me to. I know how scary it is to find out you're pregnant when you're dealing with this condition. But I know you're strong enough to handle it and to bring a beautiful child in this world. ANYTIME you need to talk, ANYTIME you need a shoulder or a friend, ANYTIME you need to vent or someone to yel at??! I'm here! Pregnancy is hard enough to deal with on its own but so magical I couldn't imagine going through a full pregnancy and dealing with my CRPS . Just remember you are an extremely powerfully strong wonderful woman for wanting to bring this child into the world well dealing with what we deal with . My heart and prayers are with you daily stay strong and give that kid all the love you can!!

You may not have caught a break yet..... But when not babies born even with all the work and tell I heard medicine pain you will get the biggest break at the mall that love that singular powerful undescribable bond of love between a mother and child. That's the biggest break of all! Endless love.....

You have all my prayers, love, and blessings for a healthy, beautiful bab, with an easy, near as can be painless delivery!
Emma




Quote:
Originally Posted by catra121 View Post
Sometimes I just feel like I can't catch a break. My biggest fear with my pregnancy last year was that I would need a c section and then have spread of my rsd internally to my abdomen...and that's exactly what happened. But I've been doing pretty well dealing with the extra pain...all I have to do is look at my beautiful smiley happy baby and it's all worth it.

Monday night at work I started to get really bad pain in my abdomen...much more severe than the RSD pain usually is and different pain...stabbing instead of burning. I almost went straight to the ER on my way home from work but talked myself out of it thinking it was probably just a flare up. Next day I start bleeding but it stops quickly so I hold off on going to the dr. Wednesday morning I have more bleeding so I go to the dr for walk in hours. Basically...they give me antibiotics and tell me if any more bleeding or worse pain to go to the ER because they will be able to do the imaging and get results right away. So yesterday I start bleeding again at work so at the end of my shift I go to the ER (its 11pm at this point).

Yeah...they find a 4.5 cm ovarian cyst that is causing this pain. Good news is that the cyst is probably nothing to worry about and will go away on its own (still have to folww q1qlow up on it though). Bad news is...its incredibly painful. They gave me two doses of morphine at the hospital. I have to say...I don't take anything for my RSD pain because nothing helps so I usually don't take pain meds even at the hospital when they offer...but the nurse and dr sort of insisted I take something (this was before they even did any tests) so I gave in. Holy cow...I did not realize how bad the pain had gotten from this cyst until the pain went away. My RSD pain was still there...but just having the stabbing pain go away was such a huge relief. They gave me a script for Norco anD I'm taking it...I just can't deal with the extra pain anymore on top of the RSD.

But seriously...an ovarian cyst? WHY am I such a wreck? I have the next few days off of work and I'm just going to rest. I follow up with the OB dr Monday...hopefully things just improve on their own and this really is just nothing except a painful little blip in my life. But...ugh!!

Just needed a little vent...
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Old 04-08-2015, 06:19 AM #5
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Hi catra

Im sorry you were doing so well and ur back to this. Pm me. I need to ask questions.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 04-23-2015, 01:11 AM #6
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Ugh...just found out yesterday that on top of everything else...I also have C Diff caused by the antibiotics they put me on for a UTI when I first went to the dr when I was started getting the abdominal pain that was caused by the cyst. Another case of on the one hand being relieved that it's not just a stomach bug that I'm overreacting to...but what the heck? I am now terrified that when I go in for my ultrasound on Monday that they will find something else...my track record lately has not been good. I was feeling a little better late last week...but Monday I started getting severe abdominal pains and throwing up again...though it's pretty likely the C Diff causing it now...going on 4 weeks of that now and am just fed up with all this nonsense. I really hate being sick and am feeling pretty helpless at the moment...and it's very frustrating...
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Old 04-23-2015, 08:40 AM #7
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Good God I'm sure you're frustrated! C diff is the pits and sometimes a bit resistant. After being treated for it remain vigilant in case it gains hold again. Ask your doctor about prescription strength Probiotics or get some of the good guys at your local health food store.

I hope you beat this soon! Best of luck on your ultrasound.
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