Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-29-2015, 10:34 AM #1
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Originally Posted by catra121 View Post
Thanks everyone. Still having a rough time...hoping the visit with the dr goes well on Monday. This extra pain is really taking a toll on me...
Let us know what the doc says....it might just not only help you but others here. Sorry, about the extra pain.....
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catra121 (03-30-2015)
Old 03-30-2015, 09:44 PM #2
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Saw the dr today...looks like the cyst twisted and ruptured and that's why it's so painful. Dr said that it will take about 2 weeks for the pain to go away but that it should feel a lot better in about a week. she loaded me up with more pain meds and told me to rest for a week (ie...no working). I'm pretty bummed by the whole thing. This extra pain is really sucking all the energy out of me. At least I have my little princess to make me smile whenever I start to feel too low. I'm usually pretty good at staying positive and energetic even when I have bad flares...but this little episode has really just taken a toll on me.
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LIT LOVE (03-30-2015), Littlepaw (04-01-2015)
Old 03-30-2015, 10:13 PM #3
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Well, that's a relief that it should get better very soon.

And while I know you miss work, it's a good time to be playing hookie. They grow so fast and change so much that first year, it's amazing. Enjoy every moment.

BTW, have you thought about starting a Mommy and Me swimming class with her as soon as she's old enough?
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Old 03-31-2015, 08:30 AM #4
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I've definitely thought about the mommy and me swim classes when she's a little older. So far she seems like a little water baby...loves her baths...so I think that would be fun and also good for me. I can't wait for the warm weather so we can try one of those shaded baby pools in the yard.

Having the little one is such a blessing...but it's SO HARD when I feel like I can't hold her as much as I want or play with her as much as I want...especially with this new stuff going on. I'm sure the week will go by quickly...but it already feels like it's taking forever.
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Old 03-31-2015, 11:39 PM #5
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Originally Posted by catra121 View Post
I've definitely thought about the mommy and me swim classes when she's a little older. So far she seems like a little water baby...loves her baths...so I think that would be fun and also good for me. I can't wait for the warm weather so we can try one of those shaded baby pools in the yard.

Having the little one is such a blessing...but it's SO HARD when I feel like I can't hold her as much as I want or play with her as much as I want...especially with this new stuff going on. I'm sure the week will go by quickly...but it already feels like it's taking forever.
My last post was a little weird but I use voice texting and it apparently used words I didn't want it to. Some are so off I'm not sure what I was actually trying to say!!!! Lol
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Old 04-01-2015, 07:48 AM #6
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Hi Catra,

Glad that's over with, now you can just recover! The rupture may actually be some weirdly good news. I have had cysts that resolved on their own and I had one years ago that ruptured. There is definitely a difference in the pain! It was intensely, intensely painful with the rupture. Your pain level with a regular cyst seemed kinda high, but I thought maybe it was the CRPS or central sensitivity making it worse. The fact that CRPS was NOT making an acute pain incidence overly high seems like good news as far as your nervous system is concerned. The other good news. Rupture is rare, I never had one do that again. You will heal beautifully over your week of hooky and hopefully this will be then end of it. No needle aspiration or going on for months and months, yeah!

Enjoy that baby this week! I am sending Healing Love, Littlepaw

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Old 04-01-2015, 01:58 PM #7
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Originally Posted by Littlepaw View Post
Hi Catra,

Glad that's over with, now you can just recover! The rupture may actually be some weirdly good news. I have had cysts that resolved on their own and I had one years ago that ruptured. There is definitely a difference in the pain! It was intensely, intensely painful with the rupture. Your pain level with a regular cyst seemed kinda high, but I thought maybe it was the CRPS or central sensitivity making it worse. The fact that CRPS was NOT making an acute pain incidence overly high seems like good news as far as your nervous system is concerned. The other good news. Rupture is rare, I never had one do that again. You will heal beautifully over your week of hooky and hopefully this will be then end of it. No needle aspiration or going on for months and months, yeah!

Enjoy that baby this week! I am sending Healing Love, Littlepaw
I was actually a little relieved to hear that it was a rupture to be honest. I am always relieved when I hear that there is a CAUSE behind any pain that I have (no matter how bad) and that it is NOT the CRPS (which means it will go away). I was so worried I was going to go to the ER last week and be told they couldn't find anything...that it was just a flare up of my RSD and there's nothing else wrong with me. I KNEW this felt different and it was a relief to have that confirmed.

The pain is still pretty bad but it is getting better. I've been able to reduce the pain meds a little (go longer between doses) and am hopeful that it will just continue to improve over the course of the week. I still have to be careful not to overdo it...movement of any kind seems to aggravate the pain and only the meds and warm baths seem to help the pain...but any excuse to take more warm baths is fine with me as that helps with the CRPS pain too.

Will continue to rest and take it easy so that I am ready to return to work on Monday.
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