[ali12]

Hi all
I was just wondering how many of you out there have a high heart rate alongside CRPS
My doctors didnt really pick up on it until I started to develop syncope (3 years post onset of CRPS)
Now my heart rate only ever goes below 100 when I am in deep sleep or my BP is very high. Generally my BP also comes out at the upper side of normal on average but can fluctuate from 60/40 to 180/120 within 5-10 minutes and seems to generally be all over the place the whole day. 24hr halters show it as cycling up and down every few minutes almost like the regulation mechanism is damaged - my heart rate does the same often (but not always) in the opposite direction of my BP and can easily hit 200 with light exercise or steady walking
Three years ago I had a tilt table and was diagnosed with POTS and was also told this was more than likely as a result of having hypermobility and Ehlers Danlos
I have been for Autonomic testing to confirm the POTS diagnosis but despite trying to get an overall picture of what is going on, the POTS people are only treating the POTS in isolation by placing me on beta-blockers which I am due to start as soon as they send a letter to my GP
I get that CRPS causes the fight or flight mechanism to over-react so I am wondering if thats the reason behind the high heart rate and generally high cyclical blood pressure and as such will any medication for POTS either help the CRPS or will the CRPS override attempts to control my heart rate
The autonomic unit in London said it was good news that I wasnt showing spikes in heart rate or BP and therefore there were no signs of pure autonomic failure but this is because they could not get a satisfactory 24hr halter during testing as the cuff was twisting and cutting off circulation as it was prempting a result based on a previous reading and my reading was always very different from that expected hence almost every reading was an error and the halter had to be removed after a few hours
Thanks in anticipation
Alison xx