Hello all. My name is Chris. I had bruised my foot in July of 2014. Thought it was broken, etc. It now is to a point where cold hurts my whole leg, I get headaches (maybe migraines) 2 to 4 times a week. I walk with a cane, since that incident in July. Been to 13 doctors and they finally diagnosed red. I've had these headaches off and on for aabout 5 or 6 years, just more severe now.

I had previously torn all the ligaments in my right ankle 2 times in the past. The most recent being 5 years ago.

Everything hurts my foot, and my ankle is getting worse to try to keep walking with my cane. My muscles twitch all over, even in my face. I see a rheumatologist for medicines, and am getting more tests from Neuro April 27th to check for ms, sjoegrons, etc.

Any comments/suggestions?
Thanks!

Have they rechecked with MRI or xray to make sure nothing is being pinched, from the previous injuries ? I'm assuming they did some spine MRIs due to the headaches, twitches, etc?

Long ago we did have one RSDer that after awhile went to a chiropractor and he was able to find & release the pitched nerve , I think hers was foot or ankle too.
Might be worth a try, just in case, unfortunately many MDs don’t often consider chiropractic options..

Or possibly acupuncture?

I am going to get New mri on back as well as brain scan on April 27th, and New nerve conduction study with skin biopsy as well. My mom was recently diagnosed with fibromyalgia so he wants to make sure I don't have something on top of rsd. Acupuncture is my next thing to try. I also have been diagnosed with hypersomnia (which was before my foot injury), so I take medicines to keep awake during day as well as cymbalta, muscle relaxer 3 times a day and anti seizure medicine to knock me out at night. I don't get much sleep because of the pain.

Welcome Kermit,

I'm with Jo*Mar. Always good to have a thorough workup. At one point early in my journey I had nerve compression from swelling and that alone caused all kinds of bizarre twitching that went away when the swelling resolved. CRPS is a diagnosis of exclusion so they really need to be certain there is nothing to treat that is contributing.

I am so sorry you had to come and find us but you will find good support and community here. Come see us when you have questions, need to vent or to share good and bad news.

Sending Healing Love,
Littlepaw

My muscle twitching is getting worse, both legs, both arms, upper back. Is this happening to anyone else as well or could this be something else on top of crps? They ruled out everything orthopedic and mri on foot, so that's when they decided it was crps. But I'm finally going to neurologist now, after 5 months of seeing 13 different Dr. Its just scary the twitching is getting worse and I'm on muscle relaxer, etc.

Hello, welcome....I was on muscle relaxers for a while...didn't stop my crps from spreading...but it did help me sleep better....hope your neuro can help you...keep us posted....

Hi Kermit,

My own experience on the twitching was that it started with a nerve compression and area of buzzing that was initially about the size of a quarter, the buzzing then spread up the leg. As it increased I started having twitching in muscles of the nerve's path where the buzzing started. Then as that increased I started having it in my arm on the same side. Eventually, as my nerve calmed down and the swelling went down it resolved , but it took several weeks.

To this day my neuro thinks this was some sort of red herring and completely unrelated. I only know what I experienced was very real and it felt at the time like my nervous system was totally overloaded. I do know from watching videos of Ian Carroll MD at Stanford that pain signals have the ability to jump across the spine and up or down a spinal level if pain is intense enough. They have shown this with functional MRI. I don't know if maybe dysfunctional motor signals might spread in the same way.

Any chance some of this is med related? Always worth a look at side effects and interactions. Sometimes even doctors miss these. Often a pharmacist will know best. Perhaps an increase of the anti-seizure med to dampen signals? There are certainly some things to try.

I hope you find relief soon,
Littlepaw